Since I was 12 I've had extremely painful periods. I've been on the combined pill for 8 years now (I'm 25) and only have a break every 3 months to reduce pain. I've also been on several types of prescribed painkillers and medication for years. Prior to the pandemic I had been referred to get the mirena IUD fitted, but this has now been delayed.
Despite all of this, the word endometriosis has never been mentioned by any of the countless GP's I've seen. Should it have been?
I've been referred for blood tests and ultrasound scans, but all came back clean. Should I be pushing this further, or is that all that can be done without surgery?
I have painful cramps and back pain during periods (Impacts daily life and painkillers don't help, hot water bottle makes it manageable). I also get bloating during periods, constipation for 3-4 days followed by severe diarrhoea and large, frequent blood clots (size of a 50p, occasionally some bigger). I'm permanently tired and groggy all times of the months and can easily sleep for 12+ hours and still nap! I've also recently started getting nausea and morning sickness when I feel stressed or before work. The Dr has given me anti-sickness medication and diagnosed IBS. Can Endo symptoms be worsened by stress in this way?
I also saw someone else mention they had permanent cold/tonsillitis which they believe is linked to their endo. I've not heard this before, but I had my tonsils out when I was 14 as I suddenly had tonsillitis for 2 years straight! Have others had this?
Sorry for so many questions! Any advice about anything I've mentioned is really appreciated. I feel like I've reached a dead end in terms of diagnosis/treatment and don't know if it is worth pushing it further (I'm not trying to get pregnant any time soon, so feel it may be pointless until then?). I'm also surprised I've had the pill, IUD, blood tests and ultrasound (a lot more than most women seem to get) without endo ever being mentioned to me. Is this usual?
Thanks in advance for any help!