Endo and bowel problems...

[Leenie0811]

Hello everyone,

I haven’t been on this page in so long but it looks like surgery might be needed again after having my first lap in July 2017. I was put on the mirena coil but after the 1 year mark I had to have it removed as it wasn’t agreeing with me and making me really poorly. Up until September I used to contraception but was admitted to hospital via A&E due to an endo flare they put me on depro injection to try minimise periods and I was referred back to Manchester to see the surgeon again. Still awaiting my consultation due to the stresses on the NHS but I wondered if anyone who has endo with bowel complications could help?

The last 2-3 weeks have been absolute hell for me and I really don’t know what to do. I have endometriosis, Raynaud’s and lupus already so Im worried about endo on the bowel... I have food intolerances (dairy and egg) if I have them I either vomit or have diarrhoea but recently I became constipated for just over a week I had nothing come out and was even struggling to pass wind. My doctor prescribed me laxido and has put them on repeat for me I ended up with diarrhoea from them and I tried to use less but as soon as I use even one sachet less my constipation and struggling to pass wind comes back.

I have intense bloating as well as stomach pains it makes me feel sick and I got to the point where I was nearly passing out due to my symptoms. I went to A&E as told by 111 they gave me an enema, this was last week I’ve had diarrhoea again so tried 3 sachets and all the constipation etc came back this week I have become so much weaker and I’m struggling to stay awake and keep weight on me. I eat mainly a vegan diet sticking to plain foods to relieve my stomach issues I’ve been on soft food/soups mainly since this started but nothing helps me it’s either diarrhoea from laxido or nothing!

Does anyone have any advice I’m really struggling with what to do? I’m used to going every day due to my diet but now it’s like I can’t do anything it’s impacting on my work, studies and I can’t leave the house due to pain. I feel like I’m constantly on the phone to the doctors and getting nowhere! Last time I had surgery endo was stuck to the bowel (forgot to mention that earlier)

Leenie x

[LaDeDa82]

So sorry to hear you are having such a hard time! I didn’t want to read and not comment. I don’t have any similar experience so don’t have much success have you tried using prunes or prune juice and/ or milled flax? These are natural laxatives and might be more gentle? I hope you get sorted soon! X

[Leenie0811 in reply to LaDeDa82]

Thanks for the suggestion I will try them both out I didn’t know they helped I’ll keep on at the docs as something isn’t right x

[Lindle]

Are you under the specialist endo centre at Manchester?

[Leenie0811 in reply to Lindle]

Yes I am but I’m on a waiting list for having a consultation they don’t know how long it will take but I’ve been told it could be a last minute appointment x

[Ellenlar]

Hi hunny, I don't have advice sadly but my experience is similar I have suspected endo on bowel they always tell me its bad ibs but there's no way it's ibs.. I hope they help you soon

[Leenie0811 in reply to Ellenlar]

I’m so sorry to hear you’re in the same boat lovely I have been tested for crohns as well as other IBD conditions over the years but now when I say endometriosis they do nothing and say wait for Manchester to get back to me

[Ellenlar]

Honestly that's so stressful isn't it 😔😔😔 I hope they help you soon keep chasing up and checking for cancellations xx