My story

[Afrohair]

My story

My symptoms for endometriosis started last year April 2019 my partner had travelled for 3 weeks back to his home country I was left with the children.i really wanted the house spotless when he came back and we needed lots of decor doing so I decided to work on the kitchen I worked 3 days straight trying to get it done .I also remember having this obsession with washing my hair in the bath tub but I’ll come to that later .

previously I had 2 c sections and I knew one day when I walked up the stairs I had this funny sensation in my stomach I thought I’d done too much it felt as if my stomach moved outside my body as I looked at it all my stomach was bloated .

I was up and down ladders doing decorating all day I wanted it to be done then bathing washing my hair you know when you bend down over the bath in the water washing your hair for some reason I felt like the motion of it was too much i kept getting this wierd sensation in my stomach I didn’t know anything about endometriosis

but years and months before that I kept complaining to my partner my cezerean scar it’s changed ?and it hurts like I’ve just had a c section I had my baby 4 years ago my partner told me it’s nothing so I left it didn’t see anyone he thought I was making a fuss your scars not changed he said it was my second c section I could see the 1st scar on it which I never could before as I had scar revision it was like something was going on internally i kept asking why am I having these pains I didn’t have no pain on my period not what I thought was worrisome but now I look back I was having worrisome pains! on holiday I came on my period and barley moved from my sun lounger I just got teased even though my partner knew I was on my period he didn’t realise the pain I was in I even leaked through my white bikini and had to buy a new one.anyhow the pain got worse the next day after a few days decorating I went to bed and I couldn’t get up no one was home except my kids I didn’t know what was wrong with me but I couldn’t walk every time I tried to walk for a few minutes I was in agony I had then come on my period the next day and this agonising pain ran through my cezerean scar I’d never had that pain on my period before the pain was so bad I could not talk or move I kept telling everyone I was dying as I really didn’t know what was wrong with me the pain didn’t seem to go I even rang an insurance company for life insurance I was sure I was dying and knew my kids would end up in care if I died. I rang my doctor who told me to come in I pleaded with them I told them it’s affecting my everyday life I have to go to work my doctor booked me off sick for two week she thought I might have a cyst.still I was in pain daily but it calmed a bit when my partner came home from travelling I was hopping on one leg he thought I could walk normal I couldn’t I told him to slow down he must of thought I was having him on when I wassap him a picture of me in bed and the kids sat at the end of it cause I couldn’t move out of bed I told him I’m sick for months I kept saying I’m dying !I was off work for 5 months I had sciatica all these symptoms came up I had cystitis.i had a ultrasound and it picked up nothing but a cyst which went away.i was then referred to gyn which were useless so I cancelled it I’ll talk more on that on another post.still for 5 months endo had a hold of me I didn’t go to work and was no closer to answers .I was on a membership site called netmums a lot of mums talked about their problems on there .i kept seeing something called endometriosis on the headings but kept avoiding it but one day I just decided to look there was all these posts on conceiveing with endometriosis by then me and my partner were planning another child when you get better he said but I knew in my mind I wasn’t getting better.whats endometriosis I told myself ?i read all the symptoms and it clicked that’s me I have endometriosis.i followed lots of ladies stories and my heart sunk all of misscarrige and awful period pains I then went on to have my own misscarrige and lost my baby back in September it still hurts😢 my baby buried in the back of my garden I’ve had no luck since ,I’m grateful I do have children endometriosis is still a struggle but now I manage it well and have more of my life back with many sacrifices no unhealthy food and boy I loved my junk food sweets mc Donald’s you name it I never ate healthy.now it’s organic eggs vegetables fish and lots of vitamins I’m still hopeful that I will have another baby but its caused me to be very anxious and scared I keep telling myself to accept it and be grateful but then I think about my partner what if he leaves ?which he’s told me never we will be together if we have to we will have ivf why don’t I leave?and let him find someone else to be happy with ?this is giving me heartache every month I am overwhelmed by some people’s courage and bravery whilst going through fertility issues for me it has just started a endometriosis specialist told me to keep trying until surgery so that’s what I’ll do.he said I might have Adenomyosis but that’s not confirmed yet he said it causes misscarriges.well this is part of my story I hope it helps people and you can see that endometriosis can very much start after a c section I don’t believe I’ve had it all my life and I’m sorry to those young ladies who have .take care x

[Moon_maiden]

Hi

Hope you manage to get things sorted soon.

I’m sure your partner loves you and sounds very sensible. He knows that life isn’t perfect and illness happens to millions of people and part and parcel. Say you did leave on the chance that he would find someone perfect in every aspect, it wouldn’t happen, life doesn’t allow that, and you’d both be miserable.

Your diet will help, you’ve given some great advice here as well. I’m trying to change that at the moment, not eating is far more comfortable and less painful, but not sustainable.

I hope you feel better, it’s just crap at times

[Afrohair in reply to Moon_maiden]

Thankyou I know there’s no cure I’ve accepted that I just want to have my baby and if they say I can have a hysterectomy afterwards I may well have one I need to accept now my time for children is almost over i would be more at risk if I had any more c sections anyway and I’m so grateful of what I already have and I’m blessed.

I’m so sorry you are suffering with the eating side of things have you tried a liquid diet?liquid is sometimes easier on the stomach.I went through a stage of not eating but only cause I read that not eating cured someone I used to skip meals and fast it made me loose loads of weight but I also got very light headed and knew I was suffering from lack of vitamins I really couldn’t do it for long you should try creating a meal plan and write down what you can tolerate and what you can’t. X

[Moon_maiden in reply to Afrohair]

At least once the virus stuff is over you’ll see the right consultant that can help, they’ll take everything into account. You’ve got some great support. I’m sure you’ll get there.🙂

I’m pretty sure it’s not what I eat but just food in general, too much liquid isn’t great either. I didn’t eat anything yesterday and although I knew it was still there, not as bad. I am going to go more gluten and lactose free. I’ve done it at times in the past. Haven’t a clue why now, so weird. Tests this week will possibly shed some light, and with a bit of luck the consultant will get back to GP.

[Afrohair in reply to Moon_maiden]

That’s good at least you can get to the bottom of it gluten free really helps I had my first taste of walkers crisp today after a year and found it almost sickly my taste buds have certainly changed since going gluten free it really is ideal to do the endometriosis diet where possible I don’t think I’d go back now I’m so used to it but it’s a little more expensive x

[Afrohair]

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[Afrohair]

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[Afrohair]

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