Hi ladies, hope you are all as well as can be.
Just after a bit of advice..
I had surgery 10 days ago where my consultant sucessfully lasered severe endo and also 'unstuck' everything (my bowel, ovaries, tubes etc were all stuck together). I was down in theatre for almost 6 hours, but he seems really happy with how it went.
Before the op, i had three months on the Decapeptyl injections. The plan was for me to come off them after surgery, but specialist has now said he wants to keep me on them for another three months. And soon after that, he wants my partner and I to start trying for a baby.
I was just wondering if anyone had excision surgery and then endometriosis coming back..? I understand that we are all different and our stories wont be the same. But i'm just so frightened it's going to come back.
I had a diagnostic lap back in May, where severe endo was diagnosed. But i was told after surgery last week that it had got a lot worse since May.. And had gone to severe stage 4.
I'm still recovering from the op but have started to get the pains again deep in my pelvic area. It just doesn't feel like 'operation pain' if that makes sense, and i'm really worried. But surely it wouldnt just come back that quickly after 10 days?! Dont get me wrong, i feel sooo much better than i did before the op.. So i'm definitely seeing the benefits. But i'm getting twinges, tearing pain and also pain when my bowels move - just like i did before?
I'm also really really nervous about having my first period (which should be early Jan) after being on the injections for 6 months and having Norethiserone for 3 months prior to that. So i wont have had a period for 9 months. I'm dreading it! Anyone been through this?
Any advice or sharing your story would be greatly appreciated.