does Mirena do anything for bowel adhesion?

[Regenallotment]

I had hysteroscopy and laparoscopy on Wednesday.

Really disappointed, they didn’t do anything just took photos and put a Mirena coil in.

Told me my bowel is attached to my abdominal wall (said that’s normal). They don’t do anything unless it’s causing problems, but that is exactly where my pain is. I have pain passing a bowel movement and passing wind is painful before during and after too.

Fibroids inoperable because in uterine wall (contrary to what they thought on Ultrasound and MRI). So just leaving those.

Ovarian cyst had ruptured the week before (I knew that, I felt it go had spotting). So nothing to drain. But it recurs painfully in the same site.

Tiny bit of endometriosis scarring under right ovary, where I have the pulling pain, again do nothing despite it being where my pain is.

Uterus is generally bulky possibly more fibroids in the wall, possibly adenomyosis couldn’t say. Despite MRI. Again do nothing, despite me feeling like I need to carry my tummy around. Pain standing after sitting etc.

They seem to pin a lot of hope or put a lot of faith in the ability of a Mirena coil to address all of these things, they said give it 6 months, expect bleeding for 6 months.

Any thoughts or insights? Am I being impatient ? Is six months of more of the same pain likely? Is it really the silver bullet?

Can a Mirena resolve a bowel adhesion?

Can a Mirena resolve an endometriosis scar that pulls?

Google doesn’t seem to be able to answer this for me and the consultant just kept saying wait and see.

They don’t seem to be listening, they acted delighted they’d done a procedure and got some photos. Leaves me back at square 1 with a history of depression and a Mirena coil as a souvenir.

How long would you leave it after recovering from the laparoscopy before seeking second opinions?

I’m 51 with adult kids, full time stressful teaching job in sixth form and fatigue issues linked to Hashimoto’s.

[Fizzypoptastic]

Hi,

I have stage 4 endo and underwent laparoscopic procedure in March 2023. Prior to surgery, I had excruciating pain whilst emptying my bowels which I ignored for years. I had a Mirena implanted in 2022 (after much deliberation), however it was the best decision I ever made. It did take my body over 4 months to adjust to it but my bowel and other symptoms have calmed down immensely.

I am 45 and hadn’t tried any hormonal therapy before.

I would say please allow your body time to recover, heal and adjust to the Mirena and it will work wonders.

Good luck xx

[Regenallotment in reply to Fizzypoptastic]

Really? Oh thank you so much for replying. This is reassuring. Much appreciated x

[Poppykins86]

Hi, so sorry you are going through this. Endo really is horrible & the quality of care we receive can be so varied.

The Mirena may help with symptoms, I was so reluctant to take any sort of hormonal option at 38 with no children - but I'm now in chemically induced menopause with Ryeqo - it's given me my life back! Had 2 surgeries where they removed bits of endo & released adhesions but they never took my fibroids or the deep endo - bottom line - the surgeons were general gynaecologists & not endo specialists. I hadn't realised this could happen & like you, expected them to do more. It's never too soon to seek second opinions, I always do now. Doing so means I now have 2 endo specialists saying they can remove all fibroids (from multiple locations) & endo & save me from hysterectomy. Getting more than one view is important, knowledge is power.

The Mirena won't undo all the endo you currently have, or release adhesions, scarring etc....but they say progesterone can slow the growth...the actual evidence for that is less clear cut but many have real symptom relief from it...but it's not guaranteed it will stop endo progressing.

Hope that it gives you some relief and the side effects are manageable for you x

[Regenallotment in reply to Poppykins86]

Thanks so much for this reply, it’s all so helpful having different perspectives to compare. Brilliant you have specialists protecting your uterus. I’m so pleased to hear you have found a good level of care. Much appreciated, I will see the local private endo specialist when I’ve got the energy and talk it through with him to get a better picture. That will put my mind at rest, it’s the unknowns I’m struggling with, that and the doom cloud of impending depression which if I’m not careful I’ll bring on myself just worrying about it 🤦🏽‍♀️🙈🫣 thanks for giving me a lift 🤞🙂

[635703]

I would not take any of this. Write an email to PALS. I have had all of these procedures and Mirena Coils for maybe 16 years plus. You need surgery, from a skilled laparoscopic Endo specialist. So asking for a second opinion is excellent. But I would do my homework as to WHO in your local area could potentially give you your life back. This is absolutely disgusting, in what they have said and done with your case.

Google BGSE website. Look for your area and really do a deep dive on Endo Specialists.

For Example: My Endo Specialist has 15 years experience of laparoscopic surgery. Is an honary Prof at the teaching hospitals. She is kind and compassionate and runs a tight ship in the NHS.

If I may be candid with you? Ask the right Endo Specialist if you need a hysterectomy. From my case, everything was a big mess in my pelvis. I’m 9 days post laparoscopic hysterectomy (uterus, ovaries, fallopian tubes and cervix removed). The relief is incredible!! I also felt like I had to carry my stomach around. It’s immediately gone down in size, significantly! My post op pain is NOTHING compared to before my op. I’m lucky as no complications and fantastic anethatist. I had to loose 10KG before my op to reduce complications. I managed 8KG weight loss as I was very depressed with the pain and anxiety.

Happy to answer questions. If you can’t find the BGSE accredited hospital and an Endo Specialist. Then look up the EndometriosisUK helpline times and give them a ring. It’s manned by amazing volunteers who are all lovely people who have had Endo. It can take a while to get through to a person but it’s worth persevering with.

I’m so sad that you have been treated this way. There is hope for a new kind of life but with a lot of waiting and it’s frustrating and incredibly hard. You’re doing so well to still be able to work. In fact I think you need a 🥇really look after yourself xxx