Mirena & Headaches

[swood02]

After having my Lap on 27th Feb I had Mirena Coil fitted, they suspected Adenomyosis as bulky uterus.

I have been having headaches across my eyes and back of head/neck pain which started about a month after the coil was fitted and is daily now is this normal??

I had painful thighs which seems to go to buttock areas & lower back before the lap which is still the same and daily too.

Anyone else experienced this?

Thanks Sharon

[Disney89]

Hi Sharon,

I had headaches after getting my coil fitted but the doctor told me it wasn’t because of the coil because the hormone released doesn’t cause headaches so it could be something else causing it. Mine is being investigated for sinus migraines so maybe worth seeing if there are possible other triggers for the headaches?

Hope you manage to get it sorted x

[swood02 in reply to Disney89]

My GP said it wasn't to do with coil although I never suffered with head aches before it was fitted they just said it was a tension headache .

Hope you get sorted too x

[Josiejo77]

I started to get headaches too. It turned out I had a haemotemtra which was the endometriosis and ovarian cysts causing backed up bleeding which gave me anaemia. This anaemia was lowering my blood pressure and giving me headaches. I also had really bad thigh and leg pain because the blood was backed up above my femoral artery so the blood wasn't reaching my legs properly

[swood02 in reply to Josiejo77]

Was it your GP who picked this up or consultant? Thanks Sharon

[MMich15]

Hi Sharon,

Any hormonal treatment can cause headaches. It doesn’t matter if the coil releases hormones or not. As it is in place to affect hormones by blocking in a localised area, any sort of treatment that impacts a hormone inadvertently impacts other hormones. That’s why everyone reacts differently to say the same pill - because your natural levels will fluctuate depending on the treatment, and that fluctuation is unique to the individual.

What I’d advise is most people on the coil (or most hormonal treatments) say if it hasn’t settled by the 3 months mark then it probably isn’t a good fit for them. Gps used to say 3 months, now I hear them pushing for 6 months, but you know your body best.

Also any headaches caused by hormonal treatment need to be investigated further. Years ago I started having headaches about 2 months in on the combined pill - I was sent for an MRI scan of my head almost immediately. Now, 7 years later, they’ll just shrug and say “well you can stop taking it if you want”.

I have to be honest so many healthcare professionals are just dismissing side effects as “not related” because they’ve been told to do / say whatever to keep you on treatment - which is so irresponsible. I’ve experienced this from a gp through to private consultants. Their stance is most people are hypochondriacs and impatient, that a doctor will always know what’s best. But with endometriosis, knowing how underfunded and under researched it is, you can’t really trust them to be fully clued up on everything.