Mirena coil : Hi all Hope you’re all ok... - Endometriosis UK

Endometriosis UK

72,873 members53,248 posts

Mirena coil

Jodiepink profile image
12 Replies

Hi all

Hope you’re all ok.

I was diagnosed with Endo around 10 years ago, I had a laparoscopy which helped a lot and luckily had a baby 7 years ago. I have since had the Mirena coil fitted and whilst it has helped previously the past year my pain has returned and I also have irregular bleeding.

Has anyone else experienced this after having the coil fitted?

Written by
Jodiepink profile image
Jodiepink
To view profiles and participate in discussions please or .
Read more about...
12 Replies
Narcica profile image
Narcica

Hi Jodie, I have Mirena for over 3 years now and it helped me for about 2 Months. All of my symptoms came back and gotten worse. In 2019 had my second surgery, new Mirena was fitted in as well. The bleeding and pain became unbeareble. Now receiving Decapeptyl injection and however it worked for 1-2 weeks, other than bleeding every symptoms are back. They told me to be patient because it takes half year for Mirena to work, but it's been years and did not do anything good for me. I am just terryfied of removing because of the pain I would experience. I'd recommend you to discuss alternative options and/or combine Mirena with pills or injection. All the best xxx

Jodiepink profile image
Jodiepink in reply toNarcica

HiThanks for the reply...

I have had about 3 coils now but have to change them more regularly, I’m not sure if the hormones reduce after a couple of years and that’s why it’s happening...???

I hope you get sorted as well Xx

in reply toJodiepink

Hi Jodie

I was advised to try the Mirena coil by my GP shortly after I had my daughter, who's now 14. I bled and spotted constantly and was told to be patient and put up.with it, that it would settle down. A year later and I had had enough of pain and bleeding and had it removed. There are a few other options you could try, such as the contraceptive injection Depo Provera which basically stops your periods. I'd see if you can book an extended appointment with your GP to discuss your options. Good luck with it all xx

Jodiepink profile image
Jodiepink in reply to

Hi I’m going to try and get a referral to see my gynaecologist Thanks for the reply

Take care x

Narcica profile image
Narcica in reply toJodiepink

Most likely your pain just getting worse, it happened to me as well. I’ve tried many many different hormone combinations. Right now in Decapeptyl which makes my IBS just worse. Hope your gyno will sort it out. All the best xxx

JulesUK profile image
JulesUK

I’m not sure how long you have had it? My first one only seemed to last four years and my current was is due to be changed and I’ve had symptoms for about six months. I’m told they are made to last six years but changed at five years but for me they don’t last like that.

635703 profile image
635703 in reply toJulesUK

In 2007 they lasted 3 years. They’ve changed the lifetime of Mirena’s. I have had 3 from 2007-2021.

Endo pelvic pain came back for me in 2018. Co firmed by MRI and wait f for my 2nd lap. On zolodex and tibilone and an SSRI Citalopram.

Next appointment is Jan 2022 and that’s not a surgery date!!

On benefits - it’s crazy!!

Jodiepink profile image
Jodiepink in reply to635703

Hi I’ve had 3 in the last 6 yearsI’m going to try and get a referral to see my gynaecologist Thanks for the reply

Take care x

Teddy2021 profile image
Teddy2021

The coil helped me for a year or so then I started getting a lot of break through bleeding and the pain got more intense & frequent. I’ve had it removed, not on any contraception yet because I’ve tried everything else to no avail..

Jodiepink profile image
Jodiepink in reply toTeddy2021

Hi I’m going to try and get a referral to see my gynaecologist Thanks for the reply

Take care x

ClaireHall28 profile image
ClaireHall28

Hi! Yes, very similar stages as yourself and having mine removed next week! God knows what will be suggested after this?

fatface99 profile image
fatface99

Following with interest, had mirena fitted in May this year, pain still bad and heavier bleeding than before, consultant has prescribed POP now to stop the bleeding but i feel really anxious about so many hormone treatments... and im still in pain with random bleeding!

Not what you're looking for?

You may also like...

Mirena coil and acne

Hi Ladies sorry to ask hope I'm not being too vain but since having my mirena coil fitted nearly a...

Mirena Coil

Hi there, I am on the waiting list for a laproscomy and in the meantime have had a mirena coil...
MandieG profile image

Mirena coil

I had the mirena fitted 3 years ago when diagnosed with endo through laperoscopy. I have had...
charlottemay profile image

Mirena Coil - unbelievable pain?!

Hi All, I had the Mirena coil fitted 5 days ago which seemed to go fine until after 48hrs.. I have...
CS32 profile image

Mirena coil?

I'm new here. I would be grateful if anyone could tell me their experience of a mirena coil. I am...
olddragon1 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.