Possible perforated uterus: Hello, has... - Endometriosis UK

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Possible perforated uterus

Christin_a profile image
7 Replies

Hello, has anyone been told that their iud (mirena) may have perforated their uterus? How was it rectified?

I have an ultrasound booked for Monday to check as my GP (UK based) thinks this might be the case as I had it fitted over 3 weeks ago and I'm still in alot of pain (45-60mg codeine with paracetamol 4 times a day, plus mefanemic acid 3 times a day). I had to have the mirena put in under GA as I have pain just with speculums let alone anything else (passed out) . So of course I'm now freaking out about if they say it has perforated, how do they get it out? Is it another surgery? And if so how quickly should it be done is it an emergency where it's the same day or do I join a normal waitlist for a gynecologist?

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Christin_a
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Christin_a profile image
Christin_a

Yes the titled cervix I'm pretty sure is the cause of the pain as I had a colposcopy experience where the Dr doing it explained it was tilted sideways as well as backwards and she applied pressure to the opposite side of the speculum and it really helped.

No I don't have RV endo, only minimal endo on UV fold and left pelvic wall was found. I was fortunate that I was actually seen by a bsge gynecologist when I had my surgery last year when I was diagnosed and they excised it, so I trust they looked everywhere.

Lindle profile image
Lindle

sciencedirect.com/science/a...

Christin_a profile image
Christin_a in reply toLindle

Thanks so much Lindle. I'm just reading through the report.

Madridmeg profile image
Madridmeg

Like you, mine is also tilted and causes significant pain. I had the mirena put in and about 6 months later the pain become constant and unbearable (at three months, I was told it was just my body getting used to it). A quick ultrasound led to my surgeon booking me in for surgery the following week. His rationale was that if it has perforated, we want to remove it as carefully as possible and try to avoid any permanent damage to the uterine wall. After surgery, he explained that the mirena had not only moved, but became implanted in the muscle/uterine wall, so it was worth the surgery. If it had simply moved and was not impacting the uterus negatively, he explained it could have been removed without surgery. During surgery they also removed some endo-regrowth.

I never noticed any positives having it in, and in fact once it came out, I did feel better (until the endo returned and stuck an ovary to the back of uterus, but that's a different matter, haha).

I think they tend to treat this fairly urgently because if it's not well-fitted, it may not be giving you any of the benefits of contraception and you could fall pregnant. Obviously pregnancy with an IUD is very serious and would warrant emergency care. So be prepared to pee on a stick a couple of times.

Felma profile image
Felma

First hv usg done .

Amy_jane profile image
Amy_jane

Hi, what was the outcome of this?I’ve had my coil in 5 years, due to have removed. Gynae couldn’t do it, was referred for a hysteroscopy and they said the coil had flipped upside down and had perforated my uterus!

I am now on a waiting list to have it removed. I’m so scared of long term effects and worried it’s going to affect fertility!

Christin_a profile image
Christin_a in reply toAmy_jane

Hello

So they did an ultrasound and my coil was in place out was just really awfully intense settling pains. So I didn't have it perforated.

Sorry to hear that yours has perforated and that I can't help with what to expect etc.

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