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Endometriosis UK
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4 days post laparoscopy

Hello everyone

So I had my surgery done on Tuesday at 530, and came out about 715. They found stage 2/3 endometriosis and got rid of it. The recovery after the surgery has been all over the place, I could never have prepared my self for it.

I felt awful for 2 days I'm guessing because of the anesthesia. Iv actually come to stay with my mum as I feel so unstable but the anxiety/panic attacks that come in the middle of the night are awful. I keep getting tremors and can't stop myself from shaking I went back to the hospital Thursday evening and they said nothing seems to be wrong just keep an eye on it. I'm just trying to go with it for now, iv also come on my period today so I think my hormones have been all over the place. I'm so tired but can't sleep. Has anyone else experience anxiety and worry so soon after the laparoscopy? I think I need to try and switch off and just sleep for 48 hours, I was so screwed up before the surgery that it's like nervous energy has been left over and it has no where to go now. I know it's very early days and luckily I have two weeks off work so hoping I will just start feeling more myself soon.

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I was an emotional wreck around day 4, I literally cried all day on day 5! If you think about it, lap surgery for endo is messing around with your lady bits putting them under stress especially if you have had the ablation to burn away the tissue! It’s no wonder it’s so mentally hard on top of the physical as well! try to be patient with yourself you’ll get there, it’ll take time for your hormones to normalise xx

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Yes! It was sad and low and insecure and clingy for me; I chalked it up to after-effects of anaesthesia. It did ease. I bet it also has a lot to do with having been ‘proven right’ about the endo - for me, it was hugely vindicating to be diagnosed, but also very emotional. Best of luck with it x

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Thanks so much I feel so much better today. I relaxed alot yesterday. I think there is so much that you go through in those few hours the waiting, meeting all the nurses, the surgical team, taken down for it is like something out of a horror movie, then being put under, waking up and your now in pain and someone leans over and says you have endometriosis ill see you in two weeks then you go home and have to cope 😂😂it's taken 5 days but I'm just starting my coping journey 🤣🤣xx

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I’m going through the same girl. My surgery was 4 days ago. I’ve been SO sick. Bed ridden...and have had every test and even my gallbladder removed this past year. To finally have an answer, I thought I’d be happy but now I’m just like “now what” or “will I even feel better”? It’s super emotional but my family continues to uplift me and I’m distracting myself with crap tv hah. We should be nicer and softer with ourselves. It’s been a JOURNEY to this point and now we are in the drivers seat of our condition.

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I slept all the way through last night, starting to relax now. I'm starting to feel quite proud that I did went through it all as it was so horrific, but this is day 6, and feel like I'm coming back to life again! Hope you keep recovering well! Xx

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Awesome!! I’m glad you getting around to feel a little better. It’s day 6 for me too and I’m still having bad nausea (I haven’t taken pain meds so not sure why I’m having nausea). Hopefully in the next few days it’ll subside! I’m sending good vibes!!

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I'm living on peppermint tea, I went for a little dig walk this morning with a friend and I feel like iv gone back two days it ridiculous so back on the sofa with hot water bottle. I find I'm feeling sick once iv done something and iv only just take some ibuprofen today so getting there but my stomach is more sore than it has been. So hard to know how much is enough but I always push myself to much whether iv had a operation or not. We will just have to take it steady xx

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Everything you describe is absolutely normal. Period plus postoperative discomfort can be hell. I am happy that you started feeling better. I was in bed for two weeks and when I started small walks I always felt worst after. But don't worry this doesn't last forever. It gradually gets a lot better. Don't push yourself too hard.

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Thanks so much sometimes that's all you need to hear is that its normal to not be okay. Its so emotional I feel like I'm so happy one minute and in tears the next. I suppose it will ground us more once we've gotten through the other side just another chapter of our story xx

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