This is only my second post and I have no formal diagnosis as yet. During my recent appointment with a gynaecologist I was advised that based on my symptoms I likely have endometriosis with adhesions. I could try a progesterone only pill/mirena coil for symptom relief and also consider investigative laparoscopy.
I’ve just had my letter following the appointment and she has highlighted the right sided pelvic pain I suffer with constantly (which she said is likely adhesions).
On the letter it states “reduced uterine mobility in a retroverted position”. This is confusing for me as its always been noted (when pregnant etc) that my uterus is anteverted. Could this be caused by adhesions?
I often get a sharp stabbing pain in this area if I move a certain way, twist my body etc. It’s also painful in this area on ovulation and when I need to open my bowels.
I find in the week before my period it’s at its worst and I get a burning sensation across my pelvic area.
Sex in certain position and at certain times of the month is painful both during and after intercourse. I have a total lack of libido which has had an affect on my marriage.
During my period I suffer from extreme leg pain which I was worried at one point was what it would be like to have a dvt....my gynae has since adviced this is likely due to endo.
I am lucky that I have had 2 children (one c-section, one forceps which led to repeat surgery for episiotomy repairs). I had painful and heavy periods prior to having children and a history of pelvic pains which were put down to IBS since I was 14 years old.
I also suffer from right sided facial pain in the week before a period for which I’ve tried all kinds of medication for with no luck. I’m wondering if this is also linked to my cycle, a neurologist told me it’s “all in my head” and “abnormal pain cycles” .
For the last 2.5 years I’ve been to and from gps and consultants for many ongoing issues (reflux, reoccurring thrush, throat infections, tonsillectomy, nerve pains etc) and I’m wondering whether I’m now finally in the right hands.
Sorry for the lengthy post, I just don’t know what to make of it all at the moment. Any advice or insight from anyone with similar symptoms would be greatly appreciated xxx