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Endometriosis UK
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Anyone have these symptoms? What endo do you have if so?

Pain in my right side - hip, stomach, lower back, leg

Numbness in my right leg and bum cheek

Stabbing pains up my vagina and rectum

Chronic pain all month, not just during my period

Fatigue

Pain that can make me feel sick

Pain when urinating and passing stools (period type pain) this usually occurs when I’m close to starting my period

Rectal bleeding during my period

17 Replies
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Hi! So sorry you’re going through all this! I have all these symptoms all the time (during my period and not). I’m having my laparoscopy in September to diagnose the endo, see how severe it is and hopefully remove it too x hope you get this all sorted soon xx

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I have all those symptoms and was diagnosed with stage 3 endo last month x

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Where was your endo found?x

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In the UV fold, broad ligament on right side, left pelvic side wall, right uterosacral ligament and the pouch of douglas x

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Yeah, my BSGE specialist thinks it’s on my pouch of douglas too x

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All of the above... still waiting on my lap.... hopefully I should hear in the next week when it may be! Good luck with yours x

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I have everyone of these minus the bladder pain, plus constipation and mine is all left sided. I had my lap in May and they found endometriosis in my pouch of Douglas, rectum, behind my ovaries, behind my uterus and just above my vaginal wall. Since surgery the left leg numbness has gone (it was numb for 8 months) and the rectal bleeding during menstruation has stopped. I am still waiting to see improvements in the other areas.

All the best and hope you get some relief soon xx

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The BSGE specialist I see said that my pouch of Douglas is tender and all the symptoms I have point to it growing there. I was diagnosed about four years ago by general gynaecologist but I’m finally seeing someone who knows what he is doing. Hoping to be operated by him soon x

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Hey lovely, can you give any advice on how you chose your specialist? I’ve heard lots on this forum about making sure you go to an Endo specialist rather than just straight gynae - any tips would be really appreciated!! X

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Hi there :) I literally just googled BSGE specialist centres near me and found one, then went to my GP and asked to be referred and she did it :) good luck!!x

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Thank you so much! X

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I have all of this except for the rectal bleeding, I'm having my lap in September with an endo specialist to get some answers (I had a clear lap in December last year but it was done by a general gynae who did the bare minimum). Are you in the process of getting diagnosed too? x

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I was diagnosed about 4 years ago by a general gyneacologist and she lasered a minimum amount on the surface of the right side. But now I am seeing a specialist at a BSGE accredited centre and I’m hoping they operate on me soon x

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I have all of these x was diagnosed in December officially with stage 4. Losing weight for major op in the next few months x

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I have had all of these symptoms, it’s awful and I really do sympathise with you, I’m 5 weeks post hysterectomy!!! All pain gone! It’s like a miracle! I had every treatment possible over the years!! Push to see a consultant and if you are not happy, push further! Don’t settle! None of us should be suffering with pain at all!! Good luck and I hope you feel better soon 😊

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Oh sweetie it is shit isn't it. I have the same pains though as well as endo I have a functional neurological disorder so the pains and numbness are even worse and I look like a twat walking some times lol have you ruled out other things as well as endo? Luckily I don't bleed anymore as I had a hysterectomy but I still have all the crappy pain !! I really hope you get sorted babe cos it's crap living with this xxxxx

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I have a lot of your symptoms it is awful, after I had my hysterectomy I was diagnosed as having a chocolate cyst on my ovary which is due to endo. I ended up having my ovaries removed. 20 years on and I am struggling with pain, my GP thinks it endometriosis again and I have been referred to a gynae clinic hopefully I can get this sorted. I can't go through all this pain again, hope you get sorted x

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