Do you have any of these endometriosis symptoms?

Hello everyone,

I have these endometriosis symptoms and wanted to ask if anyone else has them as my diagnosis is not official. That will help me understand what’s wrong with me. I did every possible test and scan (but not lap) and all came out normal.

So during menstruation and the week before when I have the flare ups, I have a pelvic pain accompanied with all or most of the following symptoms:

- chills/ shivering

- headache/ heavy head and feeling of fainting.

- nausea, sometimes vomiting

- bowl movement

- rapid pulse and breathing

- extreme fatigue

It could stay for minutes or hours.

Did anyone experience something similar? Please help.

Thank you.

[SaskiClaws]

i don’t know if all of these can be attributed to endo but i have all these symptoms too and i’m being investigated for endo, if that helps at all.

[Hidden in reply to SaskiClaws]

That helps! Thank you. Knowing that these symptoms exist makes you feel less stressed and anxious about what’s going on. I’m sorry you’re struggling too and I hope you feel better.

[SaskiClaws in reply to Hidden]

you too, i hope you can get it sorted out , good luck !!!

[ReubenAron]

I have been diagnosed with endo and I do have headaches, migraines. Recently I have started to get nauseated, bloated and lose my appetite during flare ups too! Look after yourself, stay hydrated and eat slow release cards to maintain blood sugar levels is what I would suggest, maybe short power naps during the day just for a little re boot 😊

[Hidden in reply to ReubenAron]

I’m sorry you’re struggling too.

I can relate to everything you said, especially loosing the appetite part. I can’t eat anything during my whole period which caused me a huge weight loss :(Still trying to figure out how to manage all of that.

Thank you for the advice.

[USgalwthendo]

I have been diagnosed with endo. For a few days before and all during my period I have mood swings, severe fatigue, headaches, diarrhea, pelvic pain, leg pain, and nausea. Going through this for 9 out of every 25 days has thrown me off. I stopped running and I’m overweight so I’m trying to follow a goal: short walks, gentle yoga, and more fruit and veg. Found some great “yoga for endo”vids on internet. Hope my symptom feedback is helpful and best of luck to you.

[Hidden in reply to USgalwthendo]

Thank you for your reply! That really helps. I know the struggle as I also suffer 14 days out of 30

I hope you feel better. Best wishes for you.

[Littlepeax]

Hiya, I have endo and for me the main symptoms during my period are nausea (so much so I always think I could be pregnant!) Here's hoping. But for me nausea and mood swings are the worst symptoms. I used to get awful pain but changed my diet over a year ago and hardly get any pain now! But for you it could simply be PMS. Do you bleed in between periods or have any clots during your period? Also I think the main sign for endo is extreme pain x

[Hidden in reply to Littlepeax]

Thank you for your reply. I don’t bleed between periods, my period is significantly regular but heavy.

My chronic pelvic pain makes the doctors suggest endo.

I’m sorry you’re struggling too. I wish you fell better.

[Shelly085]

Hi I have endometriosis an I get all these symptoms, they went away for a few years but hit me with a vengeance this year. I’m currently on waiting list for surgery, which can’t come soon enough. I hope you find out what the cause is for you xx

[Hidden in reply to Shelly085]

Thank you for your reply. I’m sorry you’re struggling too. May I ask what made the symptoms disappear for years? Did you take any special treatments?

Best wishes for you and good luck with your surgery.

[thara9643]

No but I get really bad foot pain