What options do I have left?: So I had a... - Endometriosis UK

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What options do I have left?

LadyB1984 profile image
5 Replies

So I had a laparoscopy to remove by helica stage 4 endo on my uterus, ovaries, cervix and pouch of Douglason as well as a chocolate cyst on my right ovary. At the same time they did a hysteroscopy to remove a ‘whopping’ submucosal fibroid from my uterus. This was on 31/1/18. 10 days later I ended up admitted back to hospital for 2 nights, via ambulance with uncontrollable vomiting.

After this relapse I started to recover, got back to work 4 weeks later and up until 3/4 weeks ago I was feeling much better then things started to go backwards. The pain is back to what it was before the op, the nausea is back, appetite gone again (I’ve lost 3 stone in the past 12 months).

Been to see a new specialist today who has suggested that either 1) endo was missed 2) not all of the fibroid was removed 3) more cysts 4) all of the above.

Booking me for an urgent MRI within next two weeks (last MRI showed nothing despite there being nodules in my pouch of Douglas) and have suggested Prostap 3 monthly injections. Now I tried Provera before and it made me depressed (snivelling wreck) within 8 hours of the first tablet and I am terrified Prostap will make me feel the same... any thoughts?

Thanks in advance and keep those chins up- you’re all amazing 😀

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LadyB1984 profile image
LadyB1984
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5 Replies
Maxi72 profile image
Maxi72

Sorry to hear what you’re going through. Like you, my mood was terrible on a progesterone only drug ( double dose Cerazette) and I understand that this is fairly common. Since Prostap ( with HRT after the first month) my symptoms are better and my mood is largely normal although I do sometimes get mood swings (irrritable) that I relate to it kicking in/wearing off. Hope it works well for you. Good luck. 🙂

LadyB1984 profile image
LadyB1984 in reply to Maxi72

Thank you, that’s really reassuring. I am wondering if I should try a different pill first, I should have mentioned we do want to try for children at some point- I just want to be well first. Thank you and good luck to you too 😘

Boodie profile image
Boodie

Hi there I am on cerazette 2 a day I am in more pain p this and cry almost e wry day. I think it is the pain more than s form of depression but I do feel low. I was on prostap for 3 shots I had heart palps anxiety and suicidal thoughts I did not have a 4th shot. Doc gas given me oral provera to try but I am apprehensive. I know it is s progesterone pill so not the same as prostap x

Bdgjdjd profile image
Bdgjdjd

Do you have nausea because of the pain ? Or it is not associated with pain

LadyB1984 profile image
LadyB1984

To be honest I think the nausea is pain related but difficult to know really isn’t it... i do know that gynae issues have a tendency to cause nausea

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