My endo saga continues... Just been to see the gynae after having 2 mris & and CT scan so they could figure out what was going on. It had all got very scary. I was originally told I have severe endo throughout my pelvis, then that I had a cyst behind my uterus and but today I've been told that I have endo within a large (12cm)fibroid that is sitting behind my uterus. Like, between my uterus and 'back passage'. He said the endo is contained within the fibroid and is not cyst as they first thought. He is confident it is maligned. He said it's very unusual and complex presentation which is why it took so many scans and they were all very puzzled by it. He said I don't have endo elsewhere and apologised I was told this and said it was because it was a non gynae radiographer looking at a bone mri but now they've had more specific scans, and the endo & gynae team have reviewed, they can now see what it is. He said it's just very unusual.
He said as the fibroid is growing from my uterus, surgery would be complicated and could risk hysterectomy so his preferred treatment is to do chemical menopause. He didn't say the name bit said it would be one injection lasting 3 months and I would get this twice, so covering 6 months and I would take hrt at same time to minimise symptoms. He said the aim would be to shrink the fibroid which he thinks would reduce my symptoms. I hate the idea of chemical hormones but also hate the idea of surgery and want my life back so I feel I've no option really.
I'm very disabled by my symptoms, mostly chronic fatigue and back pain bout I also get a lot of abdominal pain and some gastro symptoms.
Any advice on this would be much appreciated.