Hi everyone, I'm new here but have a question. Background is a bit long, so bear with me!
I have 5 kids, luckily never had any problems getting pregnant. I've always had heavy periods, to the extent that when I'm not on a hormone contraceptive I have to change a Tampax every 2-3 hours during the first few days of my period, which lasts 7-8 days. I'm currently on Depo-Provera and don't have any periods at all.
My first 2 children were born naturally, but my younger 3 were all Caesarean section (premature, but waters had broken and had various complications which meant caesarean was necessary). I also have IBS (Irritable Bowel Syndrome), and thanks to the spinal anaesthetic with my first caesarean I have Chronic Back Pain too.
I first suffered severe lower abdominal pain 2 1/2 years ago. Was admitted to hospital via a&e, stayed for a week, was discharged with no answers and still in pain. The Dr I was under while I was there was convinced it was bowel related, despite me saying it didn't feel like my bowels and that I thought it was gynae. In Sept 2010 he put me through a colonoscopy which had me screaming in pain the entire way through despite painkillers and sedatives, and left me with PTSD (Post Traumatic Stress Disorder), and found nothing as I had predicted. He then referred me to gynae, which I had been begging for him to do since I was in hospital for the week stay.
In Nov 2010 I had a laparoscopy which showed endometriosis and adhesions (from the caesareans). They removed what they could of both the endo and scarring, but told me that the front wall of my bladder had been stuck to my abdomen, the front of my uterus was stuck to the back of my bladder, and my bowel was stuck to the back of my uterus!
I was entirely pain free for a year, then slowly the pain would come back a little bit when my period would be due (am on Depo injection so don't have periods). It has slowly been getting worse over the last year and I'm up to the point where I am in constant pain, have a dragging pain sensation when I go to the toilet (wee and poo), am in a lot of pain when I have sex, and when my period would be due I'm doubled up in agony. All this despite already taking paracetamol, ibuprofen, and tramadol several times a day every day for my back pain, so I dread to think how bad my stomach would be if I wasn't already on the painkillers!
I've been to my GP who has referred me to gynae as she thinks it is pretty definitive that the endo has come back. She said it would be 2-4 weeks before I hear from them offering me a consultation appt, it's been 3 weeks and 3 days already and nothing so far. But I've also asked if I can have a hysterectomy. I'm only 28, but I can't keep repeating this pain cycle every 2 years or so (aside from not wanting to be in pain, it impacts on my kids if I'm in and out of hospital etc) and I've had all my kids and am absolutely certain I do not want any more.
Does anyone know how likely they are to do a hysterectomy? I know there's no guarantee that it will stay gone after a hysterectomy, but I need to do something and seems to me like the best option having already tried some other treatments (painkillers, hormones stopping periods, laparoscopy removing the endo etc). I've done a lot of reading up on the whole thing (endo and hysterectomy) so I know what's involved with both.