Since the age of 11 when I first started getting periods I was absolutely floored for at least 3 days every month with pain. In the beginning it used to be just the crippling pain every month to the point that I would fear my next period. Sounds dramatic but honestly I thought I would die from the pain.
As I got older other symptoms took effect like bowel issues, fatigue, anaemia and a B12 deficiency that seemed to come out of no where. I would be in pain almost every day at that point. My doctor had given me ponstan (mefac) as well as a clotting tablet to lower the amount of blood. So at 17 I decided to go to a gynaecologist just to be given the pill which didn’t work, I vomited every day and my mood was awful, I tried 3 separate pills after that which also did not work.
Later I changed doctor who decided this was not normal and sent me to a maternity and gynae hospital. They did a hysteroscopy and D&C along with insertion of the coil. After the pain got worse and a cyst formed, multiple trips to A&E confirmed this but told me that the cyst should not be causing this amount of pain. The nurses suggested endometriosis, I had heard of it before as family members suffered with it.
So my follow up appointment I pushed for a laparoscopy which I had just yesterday.
The original doctor who is a specialist in this area who I was supposed to have (who I have never met) did not perform the surgery. Instead another doctor who I did not know performed it. I came out with just two incisions and found out on my file they had written, “laparoscopy with cystoscopy” I had to tell him that it was supposed to be for investigation of endo to which he scribbled at the end of the page “treatment of endometriosis”. Even though the cyst I had had leaked and essentially dissolved before then. When I woke up he told me more about the cyst than the endo which he told me they did not find any. I got upset and he then told me that some people just get bad periods and that’s my pain either that or look into IBS. I asked him about the possibility of IBS affecting my periods to which he paused and said “maybe”, he got paged and then said he had to run leaving me confused and upset.
Sorry about the long post but I really am so confused. I feel like I’m at a dead end. All my symptoms pointed to endometriosis yet nothing showed up. I am only 19 so maybe it’s my age but I don’t understand. The pain post procedure was nothing compared to my usual period pain. I’m honestly very lost and need advice, maybe this has happened to someone else?
I’d really appreciate any advice, thank you.