Experiences with

Ponstan

My pain is currently mostly manageable with Ponstan, so I expressed my priority is to find answers as I'm 23 and would like to have children in the future - this could help me plan. I was told that if I want children I should go back on the pill ASAP before it grows more.

community I've been on pain relief for the last 2 years as since being diagnosed with endometriosis thats spread to bladder and rectum in 2018 noone will touch me for surgery and have been referred to the endometriosis clinic in the Coombe hospital Dublin with a couple years long waiting list, I was on ponstan

I'm on ponstan for pain 500mg 3 times Daily and even on that yesterday the pain was bad and going to the toilet was horrible.

I was taking a codine/paracetamol combo & ponstan but as they did nothing for me consultant changed to Diclofenac suppositories, Tylex & oramorph. So far I've held off on the oramorph but the difene / tylex not great. I'm afraid that I'm running out of options... and trying to avoid A&E.

So just told to take ponstan (mefenemic acid) 500mg 3 times Daily on period. I'm constantly exhausted no matter how much or little I sleep and as you all know the pain is just sudden and fierce and debilitating.

The money I've spent on gynaecologists and all I'm getting is 'just keep taking the ponstan 500mg 3times daily 4 days a month ' this usually leaves me zonked and now I'm supposed to find work and hold down a full-time job too! Thanks for letting me cry on your shoulder.

My periods are regular, but extremely heavy and painful and I have experienced incidents of flooding over the past few months and just been told to take ponstan. I'm tired of being fobbed off, the doctor keeps telling my my thyroid is in normal range.

She is currently on Ponstan and the Doctor has mentioned over the counter paracetamol and codeine but these just aren't cutting it. Any advice would be incredibly welcome. Thank you in advance.

Typical endo-er, eh (cue for the past 2 decades: oh the pill/Ponstan/tranexamic acid will solve that bleeding and pain -errrrm nope). I'm now having to take Utrogestan every day so that any potential endo isn't triggered.

Over time I've tried various alternative therapies (diets, exercise regimes, even Reiki), as well as medication much as the pill (gave me migraines) tranxemic acid, ponstan, etc etc.

At this point I had tried naproxen, ponstan, paracetamol, co-codamol and codeine - nothing touched the pain! And the pain and stiffness had now spread to my jaw.

She gave me primolut tablets to stop the bleeding for about two weeks and ponstan which I’ve been taking three times a day with ibuprofen every day for pain.

My doctor had given me ponstan (mefac) as well as a clotting tablet to lower the amount of blood. So at 17 I decided to go to a gynaecologist just to be given the pill which didn’t work, I vomited every day and my mood was awful, I tried 3 separate pills after that which also did not work.

I've run out of my ponstan forte and naproxen. paracetamol doesn't touch the pain. I've got heat pads to stick on Pre Concert but any other ideas of how I can make this pain stop so I can enjoy myself for just 4 hours? Thanks xxxx

I have to have a hot water bottle constantly - even taking it to work now - and my pain meds are failing me most of the time (I'm on ponstan forte, naproxen and paracetamol plus my pill.) I need something better for the pain especially early morning and evenings.

The gp gave me ponstan on Friday but it hasn’t helped much... I’m wondering if it’s a flare up or could it be something else? The gp didn’t seem to concerned the other day so maybe it’s just a flare. Typically how long do flares last?

I took ponstan forte anti-inflammatorys before and tramadol painkillers after however I potentially could have gone without.

By 16 when ponstan wasn’t working I was put on the contraceptive pill Cilest. Stayed on it for 10 years until married and started trying to conceive. After several years of trying and tests not showing anything obvious, we eventually conceived via IVF.

After nothing showed up on any of my multiple ultrasounds or MRI, his course of action was to prescribe me Ponstan and the pill. When I asked about a laparoscopic surgery he said they would only consider doing this if I was having trouble getting pregnant as it's a risky surgery.

I'm also currently prescribed Solpadol and Ponstan Forte to relieve the pain but it only helps occasionally! I'm hoping to find out more about the coil and hopefully give that a go soon!