Hello, this is my first post, and I was wondering if anyone had a similar experience to me, and if anyone can offer any advice.
About three years ago (Feb 2015) I first started experiencing really bad pain in my pelvic region — basically where you get period pains. It came on relatively suddenly, and after a day or so I had pain so bad I almost passed out. I visited my doctor at the time, and he ran some tests and said it was probably a muscular problem. Over the next year and a half, I would periodically (haha) get these intense pains, that could be slightly relieved with heat, and were made worse by moving around/physical activity. Its probably worth mentioning here that I have been taking cerelle (the mini-pill) since 2012, and after a year or so of light bleeding on my period, they stopped altogether. So basically, at the time I started feeling the pain, I wasn’t having bleeding on my period. So whilst I was pretty sure the intense pain lined up with ‘that time of the month’ I can’t say I was 100%.
In June 2016, I was having the pain regularly and badly enough to go to the doctors again. I had an external ultra-sound which came back all clear, and it was kind of left at that.
Around late April, early May 2017, the pain came on again, as it had been doing even month or so, and it basically hasn’t stopped since. I saw a gynaecologist in June, and had a laparoscopy in July — which came back with no signs of endometriosis. I was referred to a gastroenterologist and have had more ultrasounds, so many blood tests, a ct scan, and a colonoscopy — all to be told that I’m basically in perfect health. The last specialist I saw said I have IBS, despite me having no bowel symptoms.
I decided to do some tests for myself, and I came off my pill shortly before christmas, just to see whether my lack of periods was a symptom, or a side effect of the pill. I had a heavy period, with a lot of very dark brown blood (sorry if tmi) and was in extra pain than I have been experiencing since early 2017.
I’m getting kind of desperate, because pain killers don’t relieve the pain at all, and I’ve not been able to work since May, which is causing me stress and anxiety. I use a hot water bottle and a TENS machine, which work while I use them, but isn't feasible for day to day life. I feel the pain in my uterus/ovaries area, but if often spreads down my legs, and into my back. I struggle to stand for more than five minutes, and can’t walk even down the road most days. There’s perhaps 3-4 days out of every month where its not as bad, but on some days there’s nothing I can do to make it go away.
Thank you for reading this far, I would be very grateful for any advice, or to know of anyone else has had this kind of experience. Also thank you for letting me get all this off my chest!