Mirena IUD not working, stick with it or ... - Endometriosis UK

Endometriosis UK

70,734 members52,159 posts

Mirena IUD not working, stick with it or try something else?

B-w94 profile image
0 Replies

Hi everyone, I'm new here so I just wanted a bit of advice on different types of treatment.

My story: (apologies it's a bit long)

I was diagnosed with endometriosis in February 2016. Since I was 18 I had awful periods and pelvic pain even though I was on the pill but I felt it was more than just period pain so I went to my gp about it. This then lead to 3 years of being sent to different places and no answers until I finally pushed for a laproscopy because I was convinced after doing research that endo was the cause which eventually turned out I was right and I had endo removed. However after my lap I was never given any information on the stage I was at, how bad it was or treatment advice. They just discharged me and sent me home with no follow up. I just felt clueless and lost after being told I had this chronic illness but then no support or information was offered so I went back to my gp who then suggested the mirena coil. The pain once I did have this fitted has been excruciating to the point where I ended up in A&E but I was told they can't take it out and I need to give it time and take cocodamol. It never went and 7 months later I am still struggling I have terrible pelvic pain and really heavy bleeding at times and it's really getting me down. I'm unsure if my endo has come back or this is all because of the coil, I have had this checked since and they said it's doing its job and it's all fine but I know something is not right. I'm not sure whats normal with endo as I have never had it explained to me properly by my GP or given any kind of advice. I kind of feel failed by how my GP/surgeon has handled all of this. Has anyone else felt like this with their doctors or had issues with the mirena where it's just made things worse or has anyone got any advice on what to do next?

Any advice is appreciated, Thanks

Bec :)

Written by
B-w94 profile image
B-w94
To view profiles and participate in discussions please or .
Read more about...

You may also like...

Mirena coil, don't be afraid of trying it.

the Mirena coil. Okay so 11 days ago I had a laparoscopy to remove endo, and I also had the Mirena...

Has anyone taken the Mirena Coil (IUS/IUD)?

control after my first surgery which was in September. The doctor's highly recommend mirena coil...

Did anyone else feel like they were being pushed into having the mirena coil?

how having the mirena will help these adhesions. I just feel like I am not being given the options...

Stick with GP or try private?

this however my concerns with endo are just being disregarded and I'm strongly thinking about paying

Stick with mirena or have it removed?

it’s changed my pain pattern rather than being around periods I am experiencing pain throughout the...