I was hoping that someone maybe able to let me have some info/help/suggestions- I have recently obtained my medical records as I'm still in pain on left side as always, can not have sex(sorry for tmi), walking hard, hip groin pain, gas pains. I didn't realise until reading the records that this has been the case for over 26 years !! It only really manifested itself in 2014, and I had a lap, no endo found, but X-ray and ct found over distended bladder and bowel loops prominent, bowel gas in sigmoid again. Put me on decapetyl and it was wonderful, pai free for 6 months, then total hysterectomy bso in February 2015. Still had probs in bowel, so had sigmoidoscopy and colonoscopy which were clear, but uncomfortable in places.
im waiting for a transvaginal scan next week but I'm always told all clear. consultant has said its my back, not endo as not found! and he says I won't have it now as I have no ovaries. My sigmoid colon is so painful. I had my cervix removed last year to see if that helped, but it's now building again. It's always worse at the beginning of the month when my old cycle used to be which I think is a little strange.
My mum, was stage 4, her sister and both my daughters have it And he says it isnt hereditary.
i don't know what to do next as I know he does not want to help me and wants me to go on pain management but I want to know what for.
Do do they prescribe decapetyl for anything else other than
Im feeling so confused and just don't know what to do, give up or try to find someone else? Am I loosing it I don't know, all I know is it's not right in that area x