Bowel endo

I think these symptoms sound like they could be caused by your endometriosis affecting your bowel. What treatment will you be having? Are you due to have surgery? X

Hi

Before i was diagnosed in 2013 with endo i had the same symptoms. I was sometimes not even finished with my food then i had to go to the loo was really frustratin. I also have stage 4 and they found it next to my womb. I actually have now a new prob. i have to drink in the mornin lots of orange juice and water to go to the toilet, i'm now even tryin to avoid goin to da restuarants cos i know that in da mornin i'll be like constipated, next week tuesday i'll visit a endo clinic for da 1 st time and i'm happy and sad at the same time i'm just so afraid that they'll say they have to op. again cos of this pain i have on my bowel. I really envy people that eats everything as in what one suppose to be eating. Only Gods knows how we are sufferin with this endo😣

Be strong xoxoxo

Hi there

I had the same symptoms you describe have I had endo nodules in the bowel have had them removed .

I was told you don't always get symptoms with endo on the bowel but of course some people do ,everyone's different if it's infiltrated into the bowel you almost always get symptoms .

if there is bowel involvement you must be seen in an endo centre .

I have had some relief from the surgery but not all symptoms have gone although it's still early days .

They may want to do some tests to rule out anything else ie diverticular etc and some times an MRI can show bowel endo .

Are you waiting for surgery??

Yes, these symptoms are typical. Click on my name and have a look at my post on rectovaginal endo which is what you have. You have previously said that you are being seen by a specialist and will be having a combined op. Presumably the MRI has shown the extent of bowel involvement. I assume it is a BSGE specialist centre doing your op?

I had the same symptoms and like noemybe I now suffer the other way and have to take laxatives, i was also told that the depo injection slows bowel down. I suffer with hemaroids the size of watermelons which I need to have sorted. Had my op 2 yrs ago and it relieved the symptoms so does a gluten free diet helps with the acid and nausea.

Yep this is true syptoms of the bowel been affected by endo.

I thought something else was wrong to but after diagnostic lap it confirmed bowel and womb are stuck together and I have same syptoms as you.

I don't eat out anymore either and have lost 3 stone due to fear of pain.

I alternate diarrhoea and constipation.

I've found don't have diarrhoea as much with healthy food.

So cut out fried, fatty foods. See if this helps . Should help with acid too.

I also find diary and carbs make it worse.

What's doc said next steps are?

I'm waiting on a mri scan see how deep it is before next op xxxxx hugs

Oh dear so you're stuck between a rock and a hard place.

Why was the op in two parts?

Sorry for sounding dim but it might be relevant to me.

Defo try the endo diet its helped me no end. Cant stress enough how much pain it relieved me.

Xxx

I have similar symptoms so am following this thread with interest...

It might be worth getting checked for h pylori which can be associated with acid reflux and stomach ulcers. My partner has it. Just a thought x

Hi Emmy-89,

I had this op in September 2015, like you I had endo on my bowels, bladder and womb, they were 'fused' together! I was told I was having a recto surgeon in the operation with me as there was the strong possibility of a resection. Apparently my bowel fell away when they lifted my womb. The recto surgeon stepped to the operating table to do his bit on three separate occasions, but saved me from having a resection. This I was grateful for. Unfortunately, I have experienced severe consequences with pain and constipation since my operation. I am now waiting to be seen by the bowel surgeon, this is at Southmead in Bristol, where I had my operation. I had my endo operation by one of the best surgeons available. No I can't say how well my operation went for th endo due to the agony I'm in from the pain in my left side. I research all the time and I feel that the majority of my pain was and is from the bowels. I think in hindsight, I would have preferred the bowel resection and had all the endo effected colon removed!

Possibly the second part of the operation that they are referring to could be the re-connection of the colon? As this is only a temporary measure and would not be a life long situation!

Speak to the Endo nurses, get some counselling if you are having a hysterectomy, you will need this..... Throughly weigh up the pro's and con's ..... If they can help you achieve the best operation, with the right out come for you, then you can get the life back you deserve. But do some of the leg work yourself because they don't do it all for you. Unfortunately you are just another patient who is in need of treatment in a long line of many and they just don't give you all the collective information and organisational information of groups that are out there to help you. I hope this helps.

Much love

Jo xx

Hi.  Hope you are ok.  I have frozen pelvis. My old gynae attempted to carry out a hysterectomy but looking back seemed ignorant to how bad I was.  She could not perform it and had to call a bowel surgeon in whilst I was in theatre for advice.  They only managed to remove an 11cm cyst and the ovary it was stuck to. She then discharged me from her care, never to to be seen again and put on Norethisterone to stop my periods.  18 months later I had severe pains in my stomach ( I have a high pain threshold ) turns out the endo on my bowel had twisted it and blocked it.  To cut a long story short,  this resulted in having an emergency bowel resection after the first hospital I went to said it had cleared after 4 days,  and my GP sent me to another hospital.  

I would have the op done if it is being offered.  It's not pleasant,  but you will feel better.  I was lucky not to have a stoma.  My bowel consultant and his team were amazing. I was allowed home 7 days after the op.  Had 3 months off work ( my scar is about 28cm / had 40 staples),  I am now on Prostap with Tibolone add back,  and under the care of a very good gynae who will not discharge me from his care,  and insists if I feel anything does not feel right that I contact his secretary immediately. 

Emmy-89 this was a really helpful thread you started. How are you doing now? I was wondering for any of the ladies who mentioned having bowel involvement with their endo - did this always show up on MRI? I have had many of the symptoms listed for YEARS - unexplained nausea, gas, stomach pain, diarrhea, heartburn. Have been diagnosed w/ both acid reflux and IBS, but it wasn't until all my other problems came to a head that my doctors started thinking these gastro symptoms could be related to endo. I am having a colonoscopy in a few weeks in preparation for my first lap in Oct. Just wondering if your doctors knew ahead of time of bowel involvement through scans/tests or if it can be a surprise once they get in to do the surgery. I don't think I will have a bowel specialist present during the surgery, which is why I ask...