Diet advice

[Peaches45]

Hello all,

I have been diagnosed via laparoscopy just last week. I burst into tears, tears of relief that I am not going mad!

I know this is a life long thing. Doctors seem insistent I have a coil fitted but I refuse, purely because the hormones never agree with me.

I would like to invest in my diet to help with bloating and overall health. With food and potentially supplements.

I have seen some Instagram pages promoting certain supplements etc but i do worry about what is genuine or not with social media as a lot of it is paid ads and it can be pricey!

Also I want to learn what foods are beneficial and what are absolutely no go's with endometriosis!

I am not overweight but I blow up like a puffer fish and the bloat can be painful and uncomfortable.

Thanks in advance!

X

[Regblue]

I hope you’re doing ok. I’ve been told I have it via MRI but next step is laparoscopy to completely confirm and then remove anything they find. A lot to think about now but the NHS wait list is long. Sending you a huge hug as I also felt very emotional - mixed emotions of relief after all the years I completely understand that.

In terms of diet - i follow the endo spectrum on Instagram and she’s done the AIP diet and has success from endo symptoms. I’d recommend you following her. I haven’t tried it myself as I e just not got the head space right now but I am very interested.

Good luck!

[Peaches45 in reply to Regblue]

Thank you! I will look into those and good luck with your surgery! The waitlist is a joke but I hope it flies by for you.Now I'm recovering and still off work, I feel it's the best time to make some changes to what I eat 😌

[Hello33]

Hi I've been doing a bit of research and I believe dairy is a no no because it contains growth hormones and anti-biotics which would make sense. Also soya apparently isn't great either will be looking into that a bit more! I would make small changes first. Walnuts are ment to be great for inflammation as I can't take anti-inflammatory. Hope some of this helps and best wishes x

[Peaches45 in reply to Hello33]

I agree, dairy is the worst! I was diagnosed with lactose intolerance when I was 17 and grew out of it but I have recently wondered if it was linked to undiagnosed endo. I always have oat milk now but sometimes I'm sure it makes me puff up!

Thank you for your tips! Much appreciated x

[Hello33 in reply to Peaches45]

Also check out we are feel they do supplements for all sorts they have great reviews! I'm taking one's for my hair as my hormones have wrecked it just keeps falling out! x

[TurquoiseOrange]

Hi,

I have found wild nutrition endo support supplement helpful to manage pain and has reduce blood flow during my period.

[Peaches45 in reply to TurquoiseOrange]

Thank you! This sounds amazing, there's a lot to support pain but not much to help reduce blood flow so this sounds worth a try!! X

[TurquoiseOrange in reply to Peaches45]

Yeah it helped me with that which is really good for me as the heavier my period is the more intense the symptoms.wildnutrition.com/products/...

[Catskils]

Endometriosis UK did a webinar on Endo and nutrition earlier this year which you might find helpful:endometriosis-uk.org/webina...

[Peaches45 in reply to Catskils]

Amazing, thank you! I will definitely get on to that 🙂

[Whoosh451]

hi peaches45,

I totally know what you mean, there is a lot of advice on Instagram but it’s difficult to know what is promotion and what is genuinely useful. I have had some advice from a food scientist (not a specialist in endo, but in inflammation) who advised me about specific inflammation inducing foods.

Also supplements can be useful, but it’s key to try and get these nutrients from real whole food as much as possible as that way you absorb them rather than just excreting them through urine.

So what I now do is, as soon as ovulation has happened (I usually know because of pain and migraine!):

No gluten

No dairy

No red meat

No ultra processed food

No alcohol or caffeine

Supplement: good quality evening primrose, good quality rainbow trout oil, magnesium maleate, vit c and vit D. I only take these for two weeks at a time in the lead up to the period.

I’ve noticed a reduction in bloating and bowel symptoms around my period and also a massive reduction in pain.

I’d recommend trying a few different things to work out what suits you and don’t worry about spending loads of money on a super restrictive diet. The most important thing is to eat lots of plants and avoid ultra processed foods (which includes all those strange powders that seem to get promoted online!)

Good luck and hope this is helpful

X

[SeedsandNuts]

Hello Peaches45,

I'm glad you have some sense of relief because it can often feel made up as it is not a visible physical disability.

From my experience, I had to make improvements to my diet - including more fibre, fruits, veggies, omega 3 supplemants / oily fish, hydration, cutting back on (not out 'atm for me') gluten, moderate exercises.

You can contact Olga Bonde, olgabonde.com/

She is a nutritionist, she can provide more professional advice and work with you based on your symptoms and goals.

I am currently on Zoladex awaiting surgery.

I hope this helps and take care.

[ccfd9]

your best bet is a book “Endometriosis a key to healing and fertility through nutrition” by Dian Shepperson Mills. This goes through all aspects of the disease and what may help. Dian also has a web site endometriosis.co.uk and will give personal advice if you require it.

From her research many people get benefit from avoiding wheat and gluten from their diet, which can be hard at first, others get benefit by avoiding cows milk and dairy products often sheep’s and goats milk may be okay. Of course some have to avoid both.

[Sunset-lady]

I have gone Paleo and it has made a huge difference x

[EmB18]

I didn't get on with hormone treatment either and found an anti-inflammatory diet really helped. We all react to different things, so it can be a bit of trial and error to find what helps and what makes things worse - for me wheat was the main problem. Good luck.