New diagnosis...SO many questions?? Stage... - Endometriosis UK

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New diagnosis...SO many questions?? Stage 4 endo

DottyLou1 profile image
7 Replies

After many years of debilitating Period pains I thought this was normal (opps!).

My wife and I started fertility treatment in 2014 and since then I've had problems conceiving, with my latest HSG showing occluded Fallopian tubes and a polyp. I finally had a laparoscopy & hysteroscopy on 31/05/17, they removed my fallopian tubes and polyp. They found I have "kissing ovaries", my womb is stuck to my bowel and there's general pelvic inflammation, subsequently i have been diagnosed with severe Endometriosis (stage 4). Yesterday i started Prostap injections and my consultant wants be to take/ have these for 8 months...

Can anyone give advice on how I can optimise my health (going into menopause) and any tips? I need to sort a healthier diet out (don't eat meat, fish or eggs eek so need to work around this) and wondered if I should ask for cholesterol blood test via my g.p?

On the upside my op site is healing really well and period pains are touch wood ok at the mo (probs strong co-codamol and ibuprofen helping). Also I haven't had much information on all this any further info/ links that can be recommended? thanks in advance...

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DottyLou1
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7 Replies

I'm sorry to hear things got to the point they did before you got the intervention. You sound pragmatic and positive. It's quite inspiring, I've just done a post about feeling sad. Maybe I should take a leaf out of your book and be more solution focused so if anyone answers your questions I would be interested to see what they say so I might be able to apply it to myself. Sorry I'm short on advice other than hot water with a sprig of fresh rosemary in and some brown sugar for taste I was told helps with women's health from a herbalist. I also go to accupunture weekly which helps with a multitude of things. Sending warm wishes to you going forward x

DottyLou1 profile image
DottyLou1 in reply to Thepussycatandtheowl

Thanks for your reply, early days for me i'm sure the shock/ emotional response will kick in soon. I'm already on medication for low mood and think that's took the edge off xx

DottyLou1 profile image
DottyLou1

Thanks, very interesting! I'm in the UK but Live in Wales?? Maybe different process do you think? Not sure if would be eligiable through NHS England?

Was quite shoked the consultant doesn't want to see me for 8 months now? then I thought wil i need another Lap becuse how else will he know the medication has done it's job? not sure what the best course action is?? xx

DottyLou1 profile image
DottyLou1

Thank-you, this is very informative and to be honest i have felt I need more information because "here take this and see you in 8 months" is not very reassuring...

DottyLou1 profile image
DottyLou1

I'm wondering if the consultant didn't refer me onto a clinic because he didn't talk of surgery for me. I'm keen to know the full extent of my stage 4 endo as i was half alseep/ in shock when he explained it all. I plan to contact for my records or at least a report on it all x

Heloo85 profile image
Heloo85

Calcium and vit d will really help you! Supplement if you cant get 20 mins of sun a day and dont eat a healthy balanced diet. Menopause really effects bone health! Im currently on my second course of Zoladex! Just same as anything else really, try to eat healthily, drink clear fluids and exercise. It wont cure you but it will help!

Good luck

DottyLou1 profile image
DottyLou1

discharge letter and copy i had mentions op to remove poly and fallopian tubes with an incidental findig of severe endo and that they'll write with folow-up. If this is the copy the g.p gets they'll know less than me... ;-/

Ok thanks.

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