Hello Ladies 💛
For context, I’m 28 years old, never had kids, been suffering with endometriosis-like symptoms since I was in my teens, with the symptoms deteriorating in the last 3 years or so.
I’ve just come back from a consultation at Darent Valley Hospital where I’ve been officially diagnosed with stage 4 endometriosis after an MRI.
I’ve been told I have a 5cm cyst on my left ovary which could grow bigger over time or rupture, causing an acute medical emergency and potentially the loss of an ovary (which freaks me out). I have recently had a smaller cyst on my right ovary which seems to have gone away on its own without any issues.
My bowels etc. are also all stuck to my uterus.
The consultant has told me that the cyst cannot be ignored and I will need a 2-3 hour long laparoscopy where they empty my bowels beforehand (?) and I could also require a bowel bag (not sure of the proper medical term) but they did not clarify whether it would be permanent - I’m really hoping not because that’s yet another thing that would truly freak me out. But it sounds like they will also look at disentangling my insides from the uterus?? So it won’t be a “simple” laparoscopy, per say.
Because my symptoms aren’t severe enough lately (aka I have gotten very good at managing them…), I have been put on a waiting list for an op but I think the current waiting times are anything from 6+ months.
I’ve also been told that after the operation I will need to take a contraceptive pill until such time that I am ready to have kids, in order to manage this wonderful disease / prevent it from coming back.
I guess the point of this post is to say that I am absolutely, beyond petrified of the surgery that I apparently need and don’t know what I will do when the day comes. I am otherwise very active and healthy and am scared that the op will mess me up even more than what I’m going through now. 🤷♀️