I was never told I am in stage IV of my endo I just went after I had menopause experience treatment and hormonal pill to let my GP know I either have kidney stones or it has returned with more 'friends'. I have experienced situations like waiting 6 weeks for a cheek and lost information or results, in the end I was offered a laparascopy in June which was performed at the end of October.
My case was pain everyday, there was no before or after period. When it comes to period I did not knew when about I had it because I had months with no bleed for about 2-3 days and starting over. I had pain when it come to bladder and bowel on a daily basis. Constipation I was fighting for years no one told me is related to this. I went into surgery for a left hand side removal of endo and I woke up to find out I had one on my bladder and bowel and that I am actually full of them. I know have the injection treatment for menopause and not sure which pill treatment I am to start. My doctor is to see me in December to follow up. As I had previous treatments before when I was at the operation stage I have nothing to lose as I was all the time fatigue, fighting nausea, unable to eat, in pain everyday and put it this way not to positive thinking.
I am 27 years old, not sure if I can have any kids, although I wish for... Yes it is shocking and worrying especially when you have done nothing to cause this and not sure what are paying for, at least this were and still are my thoughts, but then in my family both my grandmothers and a aunt had fibrosis in their 40, difference is that they all have their kids in their 20's.
Recommendation, constantly take yourself away from negative thinking, input yourself and try everything to keep fighting and don't wit until you are to be drained of energy, recovery it takes longer.
I hope this will not get you too upset but it is the truth of my experience and I wish I knew of this earlier as to be hones I will have demanded this surgery earlier. Now I go with the flow and I will see how and what will change.