Muscular dysfunction- endo stage 3

Hey!

I’m waiting to start my first IVF cycle hopefully in September.

Myself and my OH have decided to take a break while we’re waiting, but being a control freak I’m worried about potentially missing an opportunity to conceive

When I had my laproscopy in April, my consultant advised me that I have weakened Fallopian tubes. My surgery notes state: “tubes appeared thickened. The dye test showed bilateral fill and spill, however there was evidence of extensive muscular dysfunction”

Along with my low AMH, endometriosis (stage 3) and my OH low sperm count, we’ve been advised that natural conception isn’t going to happen which is why we’re going ahead with IVF.

My question is, has anyone else been advised they have weakened tubes or muscular dysfunction and still gone on to conceive naturally? What even are weakened tubes? I didn’t ask my consultant more about it which I’m regretting!

I don’t want to miss an opportunity but I also want to put my mind at rest and just enjoy my ‘break’ from TTC!

Any advice welcomed 😊

Thank you!

[wanwood]

I can't comment on the tubes question, although I'm curious myself. Mine also passed the spill test, but I didn't come away feeling that the surgeon thought they actually work. Regretting not trying to find out more!

I can say, though, that my husband and I desperately felt like we needed a break from TTC at one point, and took it, and it was just amazing, such a relief. If either one of you is feeling like you need a break, it's worth doing. The combination of the things affecting you and your OH sounds like you will not be missing out an on opportunity (sadly). Endo, low AMH plus low sperm count are no doubt causing enough challenges with or without the tubal issue, and your notes about your tubes don't sound hugely encouraging. One more month is not going to make a difference for your chances of natural conception but it might for mental and emotional health. Take a month off now and rest up for September! 😊xx

[Hidden in reply to wanwood]

Thank you! We are going to take a break, just eat healthy and wait for my appointments

I’m super nervous for IVF but after 16 months ttc, it’s the next best step for us

Thanks again for your reply!

[StefaniaJW]

You can try natural treatments to clear the tubes, but if they are severely compromised and their function cannot be restored surgically, I am afraid natural conception is not an option

[Hidden in reply to StefaniaJW]

Yeah you’re right, I was just hoping for a miracle!

I’m sort of glad that I know that natural conception won’t happen so I guess I don’t have to wonder what if

Just going to relax and prep myself for my upcoming IVF cycle and hope there’s not much more waiting. Super worried about having IVF with endo but just going to go with the flow

[StefaniaJW in reply to Hidden]

I have never said natural conception cannot happen for you. I said it cannot happen in case tubes are so severely compromised that surgery cannot restore their function either, but not many surgeons can try and restore tubal function. Maybe get a second opinion.

IVF with endo is not something to worry about. If they know you have endo, they will go for the right IVF protocol and endo won't get worse. They need to adopt the right protocol though. Make sure they do that

[Hidden in reply to StefaniaJW]

Oh right okay, I think the way the consultant put it they have said natural conception is unlikely due to the muscles in my tubes

Thanks for the heads up, it’s on my list of questions to ask them. I’m not sure about the differences with long/short protocol