Hello I am new and have been reading everyone's posts and finding them very helpful. I got diagnosed last July after laparoscopy but unfortunately they only removed one endo spot. I was told it was through my blood vessels in my womb ovaries and tubes and it couldn't be removed without taking the organs out. I have suffered for a long time with awful periods and tried the pill quite early but I had a very bad reaction to several and then was prescribed the depo. About 4 years ago I started having horrific pain in my lower stomach, pain during sex, bleeding after sex resulting in me being misdiagnosed multiple times.
Since my diagnosis and for the year before that I have been in such incredible agony I'm exhausted everyday no matter how much sleep I get I still have no energy. The depo is not helping I have tried a mirena coil but only managed three months and the pain was unbearable, migraines etc. I have been on zoladex injections and HRT since January and the side effects are horrendous still having migraines hot sweats naseau vomiting pain in my bones, I have been scratching none stop and make my skin bleed. I have symptoms of cervical cancer now still bleeding after sex nearly every time ,a watery discharge, the pain after sex is unbearable for two days. I have asked to stop the injections three times and been told to continue. Every time I see gynaecology they say I need to keep going with them or get pregnant. I have asked for a hysterectomy and been told I'm too young and they won't do it ( I'm 25). I think it may have spread as I'm having a lot of problems with my bowels now and urinating I have to really force to go at all. Recently I am trying acupuncture and Chinese medicine but so far that's no helping.
I don't know how much longer I can feel like this. I know other people have it worse and it's spread to there other organs I can't even imagine how they manage because I can't cope like this!! I'm struggling to work and the last thing I want is to lose my job. My partner is very understanding but I can never have sex or I will bleed during and we have to stop and I feel like I'm ruining his life as well. I have tried everything they told me about. I'm back at gynae this week and I don't know what to do anymore.
Does anyone have any advice please on what to do when nothing else has worked ?