Had my gp appointment this morning incisions healing well my doctor had a report back saying no active endo found.
My doctor told me that the pill is doing it's job and suppressing the endo and that the spotting and slight bleeds are normal because the pill can't stop that.
I said what about the times I was taken off the pill for a little while and had really bad pain she said that was the endo because when I bleed it bleeds even with pill controlled periods because that is what used to happen when i took the pill back to back with break that is why they put me on the pill without breaks to stop my periods eg no bleeding no endo.
She thinks in my case I am getting pain because the nerves in my pelvis are sending pain signals to my brain she told me to think of it like when a person has had an limb amputation but they can still feel it even though it is no longer there and that is what is causing pelvic back and leg pain.
She said it can't possibly be my endo because it is not there because pill is surpressing it. Ishe also said I have to change my mindset to thinking from when I have pain that it is endo to it's not endo she thinks it will help.
So she told me I have diagnosed endo from 7 years ago but it is being successfully managed as long as I stay on the pill.
Has anybody had this said to them is it possible
She did not have full report of where they looked so I still don't know if they looked everywhere
I don't know what to believe but I know it is going to Ber hard to tell myself that every pain I get is not endo because I have felt that for 7 years.