I'm actually at the end of my tether with endometriosis!
I had my lap and diagnosis in April, I had some endo removed on both ovaries and behind my uterus, at that time the Mirena coil was fitted. I also had a sigmoidoscopy in may which they found nothing.
I've since been in more pain since my lap, I've actually been signed off work now because I actually cannot even manage a few hours there. I went back to my GP in july and was told they've done everything they can and they've referred me to the pain clinic (in November). I decided to go private to see if they'd be more responsive but I've since been met with the same reaction. I had another vaginal scan which found nothing (there was also nothing when I had the same scan in January but I still had extensive endo on my ovaries). I've been told that the best thing to do is to deal with the pain instead of finding out if theres more endo or if there are any other problems.
This makes no sense to me. I don't want to be on painkillers for the rest of my life. I'm already taking cocodemol 4/5 times a day and I feel very sluggish.
I've read about bsge clinics on here (not once has this been mentioned to me by the several drs I've seen btw) and was wondering if anyone had any advice on how to be referred to them and what the process is.
I need something to be done. I've been living in bed for over a month now only leaving the house to attend doctors appointments. I'm 27, single with no kids still living at home, I'm scared I'll need to resign from work and I have no one to financially support me (despite living at home). I feel like my life is on hold until I can do something.
Really desperate for any advice or information that could help me.
You could find more info by check Lindle's post here. You are entitled to choose to see a BSGE credited specialist if you live in England. Check their website out to find on e near you. In the main time still attend the pain clinic. It could still be useful for pain management.
Thank you x