A littel rant about waiting times. - Endometriosis UK

Endometriosis UK

72,180 members52,780 posts

A littel rant about waiting times.

Larrie7 profile image
2 Replies

This is kind of irrelevant I guess as I'm paying to have private surgery done with endometriosis expert in a few weeks but thought I'd mention it anyway. The statement below concerns my experiences I've had with general gynaecology before i saw the endo clinic guy.

Today I had a phone call from local hospital saying I could have my diagnostic laparoscopy done on August 2nd. This diagnostic lap was to be done by the general gynae I saw in february this year. So a 6 month waiting list just for a diagnostic lap. And I wouldn't trust that particular gynae to go anywhere near me. She was the one who told me there's no point removing endo as it only comes back and that IBS has nothing to do with endo. And that endo of the bladder would show up on cystoscopy. However the my endo specialist suspects I have bowel and bladder involvement. Ha.

So my timeline for treatment if i hadnt seen endo specialist would have been this:

Summer 2015 - symptoms get much worse, back pain, bladder etc. See GP's. Have ultrasound. Shows nothing

October 2015 - GP suspects endometriosis. Refers me to general gynaecologist, informs me waiting list is 6 months for a general gynae. During this time i have cytsoscopy done too which surprise surprise shows nothing.

November 2015 - Pay to see private gynaecologist. Tells me I need pelvic physiotherapy and i probably have a bit of endo and tells me to keep taking the pill back to back.

February 2016 - Referred back to NHS gynae who organises the physiotherapy on the NHS and refers me to bladder clinic. Initially refuses to do diagnostic lap until I break down in tears and she relents.

April 2016 - Bladder clinic nurse is lovely. tells me to drink less caffeine and drink lots more water t help with frequent urination symptoms.

June 2016 - receive phone call saying I can have diagnostic lap in August with the horrible rude, utterly clueless gynaecologist. I decline.

I'm not whinging about myself, please don't think I am. I'm lucky my mum is paying for my op privately. And I know a lot of women have to wait an awful lot longer. I've only been ill in total for about 3 years. But even so this is absolutely ridiculous. To go from my GP suspecting endo in September to finally being offered a diagnostic lap almost a year later is insane.

So if anyone in South Wales is wondering about waiting times...there it is.

Written by
Larrie7 profile image
Larrie7
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Hayulls profile image
Hayulls

I'm also struggling to get a diagnostic lap. Currently waiting 4 months for another ultra sound which will no doubt show nothing. It's ridiculous. I'm going to try A&E but I suspect I too will have to pay somehow

Tboag profile image
Tboag

It's outrageous isn't it, I'm on waiting list for another laparoscopy with a specialist from 24th Feb, looking at Aug/September, this all comes after a laparoscopy last march and a hysterectomy july for adenomyosis both by general gyne, and still in pain

Now got refferal to a pain centre and got to wait 2 august, it's laughable,

Good luck with you laparoscopy xxx

Not what you're looking for?

You may also like...

The waiting

I am so close to giving up :( currently waiting for my 2nd lap after a diagnostic one in August....

Second diagnostic lap tomorrow...anxious as hell

Hello everybody, Just a little post to kind of rant with myself! I have my second diagnostic lap...

Specialist Centres - waiting times?

I was diagnosed with stage 4 endo back in January - my journey to that point seems to have been...

Finally a referral to an endometriosis specialist of my choice

As it says got my referral!had a cancellation today the advanced nurse called me in for an...

Bladder after lap!

Hi I am 8 days after lap only diagnostic. Since i had it done i have been ok , sore but ok. I...