I've suffered with endo now for over 23yrs. It's been an everyday struggle for me and all around me.
I've tried all the possible medication, pills, coil and I finally stuck with the Depo for 10yrs but that even stopped being effective. I've had 3 lap operations to remove and detach my bladder from my bowl.
Through out this time sex has always been a issue. Painfall and unenjoyable! Predicable timed around taking painkillers! This coupled with high hormone drugs my labido has become non existent. I have two children thankfully after the battle I've endured. My husband is now also losing the will with my labido. It's ruining my marriage.
The final nail in the coffin was being put on zoladex with additional HRT drugs. The journey is only beginning because I'm due to have a full pelvic clearance.
Is there anyone else who's experienced the same and know of a way to improve things.
My husband has been understanding but I think he's had enough now!
I fear the worst!
Written by
anjies
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Hi, sorry to hear this but it's very familiar to most of us to some degree so know that you're not alone. I'm getting married soon and I feel sad that our marriage will start with perfectly timed sex about an hour after painkillers - yuk. It's not that I don't want to do it, it's just the fear of how much it will hurt and the total lack of spontaneity makes it much less enjoyable. I really feel for you but I can also understand that the extra worry about what your husband is really thinking adds to the overall stress for you. Are you 2 really talking? I don't mean to say how you're feeling but to tell him how some of his actions make you feel? Don't take forgranted that he knows because we're experts at hiding our pain and fears. Most of all, look after yourself and be kind to yourself, you've done nothing wrong and you'll come out of this fighting eventually. X
I experienced the same, for years with no relief. However, last May, I discovered a treatment which has seemingly cured my endometriosis, PCOS, related pain, and ALL symptoms. Apparently, many of us are estrogen dominant (birth control pills make it seriously worse because of the synthetic estrogen) and the elevated estrogen in our bodies throws the body out of synch. I began using an over the counter progesterone cream, which is also available online. I used it religiously morning and night...into the second month of using it; huge results. No more cyclical migraines, horrible ovarian pain that lasted for days, cysts, or ANY of the terrible issues that I had been experiencing for years. I've currently been on it for right at a year and have never had such regular periods and been so pain free in many years. All of my migraines and 'sinus' migraines and allergies have quit too. I am not taking any birth control pills or anything that could possibly increase estrogen, as the progesterone naturally balances it and counteracts the effects of estrogen...thus, the ovarian pain from my ovaries being literally fried by too much estrogen has totally stopped... I first started experiences all of those symptoms with the use of birth control pills when in my early twenties...I am now in my mid thirties. Months after using progesterone the endometriosis, all symptoms of it, literally vanished as the elevated estrogen was no longer worsening it, etc. This is just my personal experiences but please consider reading up on estrogen dominance and the use of progesterone to counteract too much estrogen! It literally gave my life quality again and ended all of my pain and the constant sickness.
I totally can relate to your case and at some point I also felt giving up on our marriage for causing my husband alot of dissapointments not only on our sex life but also in my function as a wife. Everytime Im having my endo attack, not to mention the pre&post pain attacks he would not complaint but I can see in his eyes that hes fed up to see me in pain. He was supportive of me getting help and he always take care of me evrytime I will have my lap and recently after my sub-total hysterectomy. He was also hoping that my pain will end sooner so evrytime we make love he will not hear me say "it hurts" or "i can't". I try to make up on him and please him in the best way I could esp. when Im in my "pain-free" days. I just hope that it satisfies him more than it satisfies myself coz I love my husband and I don't want to end our marriage by giving up..I know its an extremely painful journey both physically and emotionally. I guess if there is mutual love, honesty and support it will make our journey alot more easier..
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