Recent diagnosis of endo and PCOS - Endometriosis UK

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Recent diagnosis of endo and PCOS

Jemma97 profile image
7 Replies

I'm very new to all this, I got my endometriosis diagnosis two weeks ago and in the last two months I've also been diagnosed with polycystic ovary syndrome, I'm currently waiting for a follow up appointment with my gynaecologist to discuss treatment and where I go from here.

I'm struggling a lot more mentally than I thought I would have usually I would go to the gym when I'm down or upset but I haven't been able to due to recovering from the laparoscopy. I'm struggling with coming to terms with my diagnosis as I'm 22 and none of my friends or anyone I know has been through this and my family keep just saying it could be worse which it could but that isn't helping my current situation, I think I'm also struggling because I've had these issues for a few years now and I've only just been taken seriously despite being referred to the women's hospital twice before! I just wondered if anyone had any tips on how they came to terms with the diagnosis and what helped them? I also wondered if I changing my diet could help the symptoms?

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Jemma97
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7 Replies
FluffyBunny123 profile image
FluffyBunny123

Hi , I’ve been recently diagnosed too, it feels weird to finally be told it and taken seriously, I think it’s almost like grieving for your own body and feeling let down :( I’ve been doing yoga and a lot of meditation and mindfulness etc and it helps you keep grounded and escape constant negative thoughts. I’ve done so much research and changing your diet really helps. I still need to fully do this as I’m such a lover of food and always eaten what I want it’s such a life change but everything I have read if you cut out or down on breads, red meats diary etc and have more fruit and fibre it really helps, keep going and stay strong x Jess x

Jemma97 profile image
Jemma97 in reply to FluffyBunny123

I completely understand! I'm glad I got a diagnosis because I know that I was right to fight for them taking me seriously and I'm glad I wasn't imagining the pain or being over dramatic which doctors have said to me in the past! I'm a lover of dairy too but I think I'll just have to look into a lifestyle change now to try and help with the symptoms. Thank you for your support!x

Scho89 profile image
Scho89

Hi Jemma, I was diagnosed at the same age as you so I completely understand how you feel! I would definitely also recommend yoga, and I now walk a lot as well to get exercise even when I’m not feeling my best. It has taken me until very recently, following a miscarriage, to realise that I also needed to talk to a counsellor and get some help mentally - it is completely normal to be struggling after a diagnosis like this so maybe talking to someone would help?

Diet wise, I love food so struggled to follow the traditional “endo diet”, but the one thing I did find really helped was removing red and processed meat, and being mainly vegetarian. Hope that helps! Xx

Jemma97 profile image
Jemma97 in reply to Scho89

Thank you I’ll definitely try yoga once my stitches heal! Yeah I think I’ll take that into consideration as I’m starting a new job in a few weeks too and I just want to feel a bit more me! I’m open to trying to be become vegetarian and it’s something I’ve considered for a while now! What treated the did your doctor suggest if you don’t mind me asking? Prior to diagnosis most doctors have suggested the coil to me but it’s not something I really want to try but they’ve been very pushy with it xx

Scho89 profile image
Scho89 in reply to Jemma97

I was really resistant at first but it genuinely is really helping me and I’m starting to feel a bit more like myself, so I know what you mean! Of course I don’t mind :) i had a laparoscopy and then was put on Yasmin to help manage the symptoms. It did work well for me and I pretty much got on with my life as normal, other than when I was on the break week! The only downside, which I didn’t realise until we started trying for a baby is that it is a strong contraceptive so it can take up to 6 months for your period to go back to normal after you come off it, so worth bearing in mind! Xx

Jemma97 profile image
Jemma97 in reply to Scho89

Thank you! I was on Yasmin for about 6/7 years from age 13 and it worked fine but then I started getting breakthrough bleeding half way through the course and I’ve had the problem with every pill I’ve tried since but I’ve not been on the pill for about a year now so maybe they could try that again, it’s just so annoying how it’s trial and error for a lot of pills!xx

Scho89 profile image
Scho89 in reply to Jemma97

Yeah completely - I had two before that (Microgynon and another one I can’t remember!) and neither of them worked properly for me! Hope you find something that works for you :)

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