I am 43 and have severe endo. I exercise loads and try and eat sensible endo diet. No children due to Endo. Have had four laparoscopies, two hysteroscopies and numerous procedures and a life saving emergency laparotomy 3 years ago after I got infection from elective surgery/laparoscopy for recto-vaginal endo removal. The infection meant I had had three multiple haemmorhages in a week, and the last one nearly fatal as wound site internally had eroded hole in womb wall and main artery around my womb burst. Nineteen pints of blood transfused that saved my life so am very grateful to all the wonderful staff that got me through. Anyhow, since then been on Cerazette which has been pretty good until about 8 months ago where pain increasing again. To that end, back to the same hospital and scan showed endometrioma growing again on ovary after 3rd time as well as endo elsewhere. Going back in 5 weeks for next scan to see how my ovaries are. My question is this: despite my hospital in SE London being brilliant, but I had a bit of psychological trauma from what happened and thought of being in same ward for more surgery is making me jittery. Can I ask any of you ladies, if you are already with a hospital can you get referred to St.Thomas'/Guys instead for example? Do I have to go back through my GP?
Also regards to hysterectomy can you ask for it or does it come from the doctors suggestions in general or can you request one?