Hi all. I managed to get and speak about this on the Jeremy Vine show today and tried to raise awareness of this condition. I have signed the petition on change.org to raise awareness of time to diagnosis. I have suffered with endo for many years, my sister and cousin have it. Now it looks like my daughter may have it. I wanted to talk about how it had affected me for nearly all of my life since the age of 13. I am 44 now. I had very painful periods, diarrhoea, nausea for at least 10-14 days of the month. diagnosed aged 22 yrs (lap). carried on with masses of drugs-tricyclic pill, ponstan forte (mefanemic acid) tramadol, domperidone and aspirin for a week before my period to help break down prostaglandin.
I was lucky to have two girls in 2001 and 2004 but symptoms returned. I had been misdaignosed with IBS but it was actually endo (lap) on the bowel aswell. I had the mirena coil but had anaphylactic reaction (rare). eventually started Zoladex and had total abdo hysterectomy and ovaries removed too. that was 6 years ago and I have been very lucky to feel very well since then. I was put on HRT but in the last two years I felt like I was having the same symptoms coming back but without the period. I assumed that the hormone was inflamming the endo that was on my bowel. I stopped taking HRT. I am fine now, BUT it looks like history is reapeating itself and my oldest daughter (14yrs old) has just been suffering with the most horrendous dysmenorrhea and menorrhagia. I am definitely getting her referred to a specialist.
keep pushing folks for recognition of this disabling condition.
I would also like to pass on my love to you all- you are not alone. take care and blessings xx