Endo and Bladder Infections?

[LMB77]

Hello

I only recently found out there could be a link between Endo and Bladder infections. Does anyone have any experience with this?

I was diagnosed with mild endo 8 years ago during a lap, after years of horrific period pain. I had adhesions between my ovaries and abdomen, which were removed (the adhesions) at the time and I was fitted with a mirena coil. After a month I felt just fine, and my periods stopped a few months later. I thought my issues had been solved.

In the past year or so I've been having recurrent bladder infections, indigestion, pain in my lower right ab, and bloating plus weight-gain. I was sent for blood-tests last month (general, liver, kidney, hormones) but all results were normal.

Could these be symptoms of endo returning that have been missed or just general ageing (I am 38) or something else?

[LMB77]

Thanks. Eek, that's a daunting task! I may wait til after the holiday season to try that out!

[Sweetyassi]

Hi, I had that every month which lasted all month. My pains were unbearable. I found out that I had Endo sitting on top of my bladder which had wedged deep inside my bladder causing bladder infections and bleeding. Since I had an op last year November to remove the Endo my symptoms have since improved so much, but it turns out with all the ops I have had and the traumatic experience I have been through in the last 6 years I know have been diagnosed with celiac disease.

Sweety

[LMB77 in reply to Sweetyassi]

Thanks, Sweetyassi. How did you find out there was endo on your bladder? Was it through a lap?

[Sweetyassi in reply to LMB77]

I could feel something on my bladder, I just knew. But to get it confirmed I had a 3D scan done and that's when they saw it and I had no choice but to have another operation to remove it. The surgeon also found that my insides were stuck together, it was a big mess, they had to separate my bowels, ovaries, bladder. I was in theatre for over 5 hours. They did the op via keyhole.

[LMB77 in reply to Sweetyassi]

Oh my gosh, poor you! How are you now?

[Sweetyassi in reply to LMB77]

I'm fine now, still recovering but no pains. I just need to sort out my eating problems, I have been told to go glutenfree and DairyFree to help with celiac disease.

Hope you're feeling better today.

[applebird]

Hi, I have endo and adenomyosis and have all the symptoms you decribe. It might be worth getting a referral to gynae just to check things out as 8 years is a pretty long time to be clear of endo issues.

[LMB77 in reply to applebird]

Yes, I think you are right. I need to be checked out. I assumed that with the surgery and the coil it was all over. I wasn't really given any further information on endo after the diagnosis. I didn't realise it was an ongoing issue.

[KML22]

I had what my GP initially thought were recurring bladder infections too, but it turned out that I had endo in a couple of places really close to nerves involved with the bladder, which was making it really sensitive. I've just started taking amitriptyline for pain, and while it's not made any difference to pain levels yet, it's calmed down several other nerve-related problems I've had for years, including my bladder issues. I've gone from waking up 5-8 times every night for a wee to once or maybe twice - I didn't realise how badly my bladder was affecting my sleep! Obviously there are loads of ways endo can affect your bladder and this might be irrelevant to you, but I thought I'd mention it just in case!

[LMB77 in reply to KML22]

Thanks, that is useful. Last night I got up about 5 times for a wee. It's getting exhausting. I haven't much pain recently but I feel uncomfortable, like it's about to burn but it doesn't, and a sense of urgency.

[KML22 in reply to LMB77]

yeah, my symptoms were similar. A lot of the time when I did go to the loo I didn't do much, the sense of urgency was totally disproportionate to what my bladder was actually doing! I was a bit leaky too, which is unpleasant. Poor insides! It's good to know what's going on now though.