Hi all,
This is my first post (sorry it’s a long one!)
I am newly diagnosed… 30th December 2021 I underwent a lap which diagnosed bladder Endometriosis (it’s apparently been removed) and I have dense adhesions attaching my bowel to my abdominal wall. Unfortunately, the adhesions were not treated and the surgeon did not refer me on to anyone else.
My GP is fighting my corner as he has been dealing with my pain management for the last year or so. I’m hoping to be referred to a specialist soon…
Has anyone else got the same as me? I’m unsure what to expect, what is normal and what will happen next or even what my best options are.
My bladder still isn’t right, I’m retaining urine which causes pain and have difficulty starting. I have dribbles and have to keep trying by rocking back and forth before squeezing.
The bowel adhesions are on the right side but I always get agonising left sided pain when waste is moving through my bowel. It’s like a sharp ache which radiates down my side, back and leg. I have tried everything to relieve this pain from tramadol, heat patches, amitriptyline to eating a soft food diet. Nothing helps. Is there anything else I can do or is this it?
I feel so deflated, I am in pain every single day and it’s really having a big impact on my ability to care for my children and hold down a career. I understand that surgery can cause further adhesions, but there is also a chance it may relieve the pain I am in. What’s your experience with treatment for adhesions?!
Thank you for taking the time to read my depressing post!