I have stage 4 endo on & inside my bowel, on my uterus, fallopian tubes, ovaries, rectum, outside of bladder, endo & scarring in the pouch of douglas, aswell as andenmyosis, pcos & adhesions. In the last several months I have had endless kidney & bladder infections, as well as not being able to wee properly, awful pain & blood in my wee. Last night I ended up having to see the out of hours GP for yet another infection.
I am due to see a urologist on Thursday, as one of my GP's concerns is that the endo could have penetrated my bladder wall, & spread to my kidneys & urethral tubes. He told me that it was very likely that the first thing the urologist will want to do is give me a cystoscopy to look inside my bladder. But I know that this will not be able to see what is going on with my kidneys & now I am wondering if I am going to need to have another lap.
Has anyone else been through something like this & able to share their experiences of give any advice?