Looks like the old E-coli issue again. We have been discussing this a lot recently as it is affecting so many of us.
The bladder e-coli bug is becoming drug resistant - so survival of the fittest scenario - the antibiotics are killing off the weaker e-coli bugs - but the ninja warrior ones are hanging on in there stuck to the walls of the urinary tract system and biding there time through the antibiotics.
They are covered in a biofilm that protects them from harm (antibiotics).
So initially you think hooray - ecoli is dead, all is well, peeing is normal again...but not for long before those evil ninja e-coli bugs are popping out of the biofilm and rapidly repopulating the bladder again.
This has nothing to do with poor hygene on your part. this is not something that you are -reinfecting yourself with by not washing clothes at high enough temperatures or wiping back to front on the loo (which you shouldn't do anyway).
Whether your endo is active or not, whether it is everywhere or surgically removed - will not alter the world of e-coli. It's too smart for that.
It has to be treated as a separate bacterial infection to the fact you have endo. So your GP is your port of call regarding the prescribing of different antibiotics until the right one is found to zap through the biolfim and kill the ninja bugs that just won't die normally.
here's a recent news article medgadget.com/2013/01/polym...
This could be the way forward as more and more bugs are becoming resistant to antibiotics because their biofilm coats are keeping them protected.
medscape.com/viewarticle/50... explains the problems in the bladder.
I hve had the ecoli attack me twice since surgery and a catheter. But I have had a long spell now (touch wood) without recurrance. My GP was very good about checking my pee - sending it off the the lab to be indentified and then starting me on antibiotic and then another till the job was done. So far so good.
Until my surgery for endo - I had only once decades ago had a urinary tract infection. And the symptoms of that were quite different to the e-coli ones of recent years.
I cannot offer you any advice on a cure -but hopefully by explaining the process you have a better idea what's going on inside the bladder and how separate this is from your other battle with endo.
The bladder battle does not need a specialist - it needs determined effort with anti-biotics that break through the biofilm in you specifically, and that takes trial and error to find one that you are not drug resistant too. Keep on fighting it, keep on heading back to your GP with a weekly pee pot to get checked for infections - until you find the cure.
The drug companies are hard at work looking for ways to break down the biofilms - so we can only pray that they manage to resolve that problem for all our sakes in the future.