Can't see a happy ending, can anyone help? - Endometriosis UK

Endometriosis UK

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Can't see a happy ending, can anyone help?

Ljmajor86 profile image
6 Replies

It's been a while since I've been in touch, so much has happened, I'm 28, been in a 6 yr relationship, no kids, desperately want, I have severe endo, an active cyst wrapped round my ovary. Had a flexible sigmoid yesterday and they have found out I am a rare case as now the endo has grown through my bowel wall and have to have part of my bowel removed and a stoma bag on. I have to have a laparoscopy and an endoscopy surgery in three weeks just so they can plan my major surgery, then when I've healed from the "look around" procedure I can have the complex surgery they need to do, they keep telling me it's going to be a risky op, i am frightened to death. 7-10 hours long! They've also said I can't concieve naturally as my tubes are damaged and have a toxic liquid in them so they need to block them off and I should look into IVF after, I'm 28 and my boyfriend is 26, non smokers, Bmi are fine, how many chances do we get, I'm just terrified, it's a lot of news to get in one day and it's hard to see my happy ending, can anyone shed any light please id be so grateful x

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Ljmajor86
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6 Replies
dk1136 profile image
dk1136

im so sorry to hear your news, sending you lots of hugs, if you want to chat anytime just message me, it must be so hard and must of been such a shock.

i feel for you i really do. x

Ljmajor86 profile image
Ljmajor86 in reply to dk1136

Thankyou very much I appreciate it :) xx

Ljmajor86 profile image
Ljmajor86

I'm at a specialist clinic in Preston in Lancashire, they are good specialists and have been great with me so far, just heartbroken at what they've found out x

Ljmajor86 profile image
Ljmajor86 in reply to Ljmajor86

Specialist clinic at Preston hospital for the surgery x

Tboag profile image
Tboag

Hi darling, just wNted to say how sorry I am to hear your news, it's very hard to see the end result, im glad your happy with the specialists dealing with your case, at least that's one Good thing,

It's a scary prospect not being Able to conceive, but have a look back on some of the posts, there are plenty of ladies that have conceived through ivf, so try not to worry about that yet,

It will go by quicker than you think, and within no time you will be fighting fit,

Good luck with every thing

Xxxx

NuttyBiscuits profile image
NuttyBiscuits

I'm so sorry you've been through so much already. What a shock it must have been, so much to take in.

I've had a flexi sigmoidoscopy to look for endo in the bowel (they didn't find it, but I'm still convinced it's there). The bowel prep is the worst, glugging 2 litres of that vile liquid eh!

To answer your question about IVF and how many rounds of treatment you can have on the NHS, I believe it depends on where you live. I know in my area (Wales) we only get 1 but other areas get 3.

Be gentle with yourself, take care and good luck for the surgery

Xx

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