Good Morning Everyone,
I hope you are all as well as you can be.
I wonder if anyone on here that has had excision surgery with bowel resection for their endo could let me know if it was worth it. I am currently trying to decide if I should go ahead with this surgery (I have stage 4 endo and surgery is all that they have offered me)
I'm under the care of a BSGE centre and I have been told that they can just shave the bowel endo but this may not get all of it. If I do require resection they cannot tell me if a stoma bag will be required or if it will result in open surgery.
I'm finding it difficult to make a decision when they cant really tell me anything for certain, it feels like you've just got to agree and see what happens. I;m also concerned about the recovery time. I have spoke with the bowel surgeon who estimates 2-4 weeks whcih really seem very optimistic especially with the rest of the excision surgery require as its on my ovary, bladder, recto-vaginal fold and bowel.
I have been told that I can 'wait and see' but that just fills me with more worry that its just going to get worse and then even more surgery will be required at a later date.
If anyone has experienced a similar surgery I would love to hear from you. the thought of being so unable to do anything after my surgery also fills me with worry. I'm trying my best to be positive, but at times it is just so hard!