Hi - I have always had painful periods (that made me sick & pass out frequently) and after a particularly bad one where I couldn't get out of bed I was diagnosed with an ovarian cyst that was removed during surgery when I was 25. This was when they diagnosed stage IV Endo. I'm extremely lucky that I only get pain when I have my period but in the last 2 years I have had chronic back pain with my periods that leave me unable to walk for a few hours, sick and pass out with the pain. After a lap in jan last year my Endo specialist surgeon found my bowel and uterus were stuck together which is what he believes is causing the pain. He recommended a full hyster and ovaries removal via the da Vinci robot ( he is a leading surgeon in keyhole and robotic hyster).
I have cancelled the surgery twice already and it is now booked again for 25 April. I have lots of concerns (surgery, colostomy, pain, hrt) but my main concern is that I know the surgery won't get rid of the Endo so will it flair up and cause me pain more frequently?, and without my uterus to 'fixate' on will the Endo continue and start to stick my other organs together ( my surgeon says it is pretty 'bad in there' so I know he needs to separate a lot during the surgery anyway)? Has anyone had a similar experience?
Sorry for the long note and I feel guilty writing my worries on here when so many people have a much worse time than me, but any advice is welcome x