After periods

[Tboag]

Hi, does anyone get a certain amount of good days after period, last month and this I seem to be having a few 3/4 good days with very little pain and more energy, I havnt been diagnosed by lap yet, so still finding lots out, just wondered if anyone else experiences this

thanks,

[KatieTattie]

Yep! I would actually feel much better after the first two days of my period. As soon as the estrogen started to rise again I would be in psin for the rest of the month. I had total peritunium excision two months ago, not feeling a lot of relief yet but been told it could take a while. Fingers crossed. X

[MissBennett]

Yes, I get exactly that and I'm due for those good days starting about now....woop!

[Tboag in reply to MissBennett]

Thank you and enjoy, lol, have you had a diagnosis or surgery or treatment

[MissBennett]

Thank you, I will! I'm going to have a weekend doing all the things I won't be able to after my lap at the end of the month I have been diagnosed on physical exam (which apparently is quite unusual) and told I will need a complex, major lap....or set of laps. I've tried the pill, been on codine for years and am now on tramadol for the pain. Role-on Friday afternoon!!

[Tboag in reply to MissBennett]

How did they tell on physical exam, I thought they could only tell for sure during a lap, I'm very new to all this. IM waiting for my laposcopy appointment,

[givemeananswer]

I have no way of knowing what stage it happens at because of hysterectomy, but I keep a calandar and do get a couple of days usually each month but not always of more energy and significantly less pain. Then shortly after I have severe dizziness day, and then everything flares.

[Allison45 in reply to givemeananswer]

Hi I'm curious you have had a hysterectomy and you still get pain ?

Ally

[givemeananswer in reply to Allison45]

Hi Allison45,

I had a hysterectomy in 2003 after my lap in 2002 didn't help for very long. I had a ultrasound that showed suspected adenomyosis. So that plus previous precervical cancer scare so had cervix and uterus only removed.

I was pretty much pain free I mean not like a normal person but not feeling as fatigued or having dibilatating pain. on occasion i still had ovarian pain.

But last April the dibilitating pain returned my hip/ buttock lower back and right sided pelvic pain. An mri showed bilateral ovarian cysts.

Unfortunately the medical world being what it is sent me on the wild goose chase to find a different cause for my pain.

I should mention that my previous 3 surgeries to remove endo were not always handled by excision. They were cauterized in some areas. Also had adhesions.

So this next Tuesday i'm having a lap by an endo specialists who does use the excision method! Yay!

I have also confirmed that yes, I do have slight bilateral hip bursitis and three lower back bulging discs with nerve involvement on the left. My pain is on the right. Also oteopenia.

I hope this finds what I have suspected all along and he is able to correct it.

I am turning 51 this year and had my first diagnosis when i was 33. Suffered though since I was a young teen.

Do yourself a favor and don't take the long road to discovery as I did. These forums are full of valuable information. There are different theories on the disease that can spark some controversy but keep an open mind as nothing is written in stone. Listen to what your body is telling you when things aren't right and be vigilent. I am starting to sound like the mom in the movie Almost famous! I hope I haven't freaked you out!

[Allison45 in reply to givemeananswer]

Thanks for your reply, I'm waiting to have two scans one tranvaginal and one on stomach, as the doctor things taking to much ibruprfen may have caused a stomach ulcer.

I'm new to this site and am finding out so much already. It's great .

[givemeananswer in reply to Allison45]

Yes I too developed IBS and I believe it was because I took naproxen for period pain in the beggining it was just at that time of the month but it became everyday. What are you gonna do, life goes on you have to go to work you have to participate. It helped then but nothing helps with this hip pain I have now and when i take medications my bowels bleed now. So NO!

[CharlieSays in reply to givemeananswer]

I'm curious too! I'm being pushed towards oopherectomy, but have my doubts. Did you have both ovaries removed too?

[givemeananswer in reply to CharlieSays]

Hi CharlieSays,

No I had kept my ovaries and in Tuesdays op will most likely still have them unless there is an indication that they are causing havoc. From what I was reading on another forum last night removing or even going into natural menopause does not stop endo. This was news to me. And probably stirs a lot of debate. I don't even know if I can blame endometriosis for all my suffering as they seem to refer to ovarian cysts or peritoneal and psuedoperitoneal cysts and adenomyosis as other issues than endo. I had always just believed it all boiled down to Endo! There is a bottomless pit of information about this disease and how the theories of one specialist vs. another differ. I think these forum are important because collectively we can pick each others brains and possibly help in the mystery.

[CharlieSays in reply to givemeananswer]

Thanks givemeananswer, you certainly seem to have had a lot of problems. Like you, I suffered from my teens but was only diagnosed this year (now 44). I've had a lap, but my organs are so stuck together the surgeon couldnt do anything, so put me on Prostap. I decided I dont want it long term, so got referred to an endo specialist - he sent me for an MRI and wants to use the results to see what might be done surgically. I agree that different consultants follow different theories and treatments, which makes it all the harder for us sufferers to get the right treatment! Good luck with your lap - I hope you get some answers!

[givemeananswer in reply to CharlieSays]

Hi CharlieSays,

There is certainly a lot to be learned on the subject. Do you follow any other forums? I have learned much recently with forums that have experts contributing also on them. Please investigate I don't know if I'm allowed to mention them on this forum? I recently using a pseudonym for anonymity joined facebook specifically for this purpose. There are world renowned surgeons who participate on the forums. Please check it out! I still love this forum though especially because it has so many other groups and endometriosis sufferers often have more than one ailment. IBS for example.

[CharlieSays in reply to givemeananswer]

I have joined Endometropolis, as another member recommended it. I'll do a search for other ones, thanks!

[givemeananswer in reply to CharlieSays]

That's the one I was referring to! what's your user name on there, if you don't mind telling me, mine is Shelley Sarkisian (not my real name)

[givemeananswer in reply to CharlieSays]

I'm glad you found an endo specialist that is definately the way to go.

[Miracle77]

Trying to understand my symptoms. I have likely endo still to be confirmed by lap. I obviously have hellish period pain but pain at other times too which doesn't seem to have a pattern. I had bad periods in my late teens/early 20's and after trying loads of things had a Luna procedure. I'm suspicious I had endo all long. I now have 3 endometriomas and gynae is trying to tell me I have chronic pelvic pain syndrome and that It's unlikely I have endo elsewhere despite telling me 4 weeks earlier based on scan & exam she thought it was widespread on my right side. Trying yo convince them to do lap after all. Seeing gp next week to discuss and potentially see a different gynae.

When in the month do you ladies experience symptoms.

Thanks