Endo periods?: Hi, I was diagnosed with... - Endometriosis UK

Endometriosis UK

70,476 members52,060 posts

Endo periods?

Lyn12 profile image
12 Replies

Hi, I was diagnosed with Endo last year, I am 24 years old. My periods have always been on time but this month I'm 9 days late. I have done two pregnancy tests which both are negative. I am getting the same pain which I would if I was ovulating or having my period but there is no show. Has anyone else experienced this? Thanks x

Written by
Lyn12 profile image
Lyn12
To view profiles and participate in discussions please or .
Read more about...
12 Replies
shizy786 profile image
shizy786

Hiya..i can go about 2 weeks without having my period now but il have all the pain...and then! Finally my periods will start..I'd say for me this only started 4 months ago, even thou if been having endo symptoms for a while..started off 4 days late...then 7...then 9..now it's 2 weeks...my sister on the other had I think is actually 19 days late atm cuz her endo

Lyn12 profile image
Lyn12 in reply to shizy786

It's driving me crazy as I have all the symptoms before I get the period and there is no sign of it! And it's starting to worry me, it's never been late at all for me always on time and now it's 10 days late!! Really worrying x

shizy786 profile image
shizy786 in reply to Lyn12

I can imagine hun..its horrible..try and get down to c ur doctor and let them know..but from my past experience and my sisters current experience Dr said that it is a symptom of the endo and not too worry too much...my little sisters 22 and her periods r terrible, last month I think she was 22 days late and this month she's at 19 and when her periods finally do turn up she can't move cuz the pain..but even still the Dr says it's normal as they've done all the hospital checks...deffo get yourself down thou so they can check it out properly

SH90 profile image
SH90

I'm 22 days late also done pregnancy tests all negative but experiencing sharp pains in my left ovary went to the doctors and he didn't seem to bothered just said " wait it out" so I'm also confused

Lyn12 profile image
Lyn12 in reply to SH90

Whatttt!!! 22days? I'm always getting the shooting pains .. Really badly and then I think right it's gonna come and it doesn't! That doctor is ridiculous if they say that to me after 22 days I'm demanding a scan or something! That's horrific don't think they realise what we are dealing with daily, I'm really drained today just wish it would hurry up!!!!

SH90 profile image
SH90

I'm not going to lie I'm emotionally drained feel poorly 80% of the day with different symptoms feeling like doors are closing on me now iv complained to my doctors just waiting for them to get back to me

Lyn12 profile image
Lyn12

I'm thinking of making an appointment too .. Didn't get the best sleep last night maybe 3 hours now I'm in the gym trying to excercise anything to try and bring it on!!!

Nicolahunny profile image
Nicolahunny

I was 16 days late and went to my doctor who never seemed bothered and told me they will come I getting all the pain I usually get before I start plus left ovary pain and I believed something was wrong so begged my husband to take me to hospital and ran all kinds of tests including a ultrasound which came back that I had a cyst on my left ovary 3cm big they left it alone and blood tests were all fine had a negitive pregnancy test they sent me home on advice to rest and gave me stronger painkillers but some doctors can't wait to get u out the room quick enough and don't understand the impact this condition has on us but we know our bodies and know when something is wrong

Lyn12 profile image
Lyn12 in reply to Nicolahunny

I totally agree, last night I had a really strong pains and just took my med! I'm so glad you got back to me saying this because it makes me want to go to the doctors now! I'm sick of having all these problems it's killing me inside x

Nicolahunny profile image
Nicolahunny in reply to Lyn12

I hope you get sorted out its awful the pain we have to put up with I think you should maybe make a appointment with a different doctor they might listen but not all doctors listen I think if that doesn't help go up to the hospital and don't put up with pain your entitled to the care that all us woman deserve and sometimes keeping on at doctors and gynaecologist till they listen I spoke up and told them straight that I wasn't leaving till I got answers and that worked for me I hope you get better soon and here if you need to chat xc

SH90 profile image
SH90

Hey girls still nothing :( my doctor told me after a lap it can take up to 4 months to heal now me now getting very annoyed at this point said your telling me I may not have a period for 4 months and he said are you in as much pain as you were before the lap? and I'm not to be fair but the pain is still evident and he said well don't worry. Thing is it is stressing me out I'm just about to move and would like to start planning for a baby I feel like my time is running out with my ovaries/ womb and im stuck between a rock and hard place as my doctor won't help unless I refer myself to hospital but I'm not that bad to be in hospital im just extremely late and fed up of feeling lethargic and upset.

Lyn12 profile image
Lyn12

Hi girls, hope you's are all well today .. Still no show of periods but my boobs are in extreme pain now and barely feel like I can wear a bra! Defo making a doctors appointment tomorrow xx

You may also like...

No periods. Bowel issues. Endo?

seeing a gynecologist 10 years ago for long painful/heavy periods and extremely painful sex, it was...

endo with out periods

dont have periods due to implant in my arm but every month the time around what would be my period...

Endo and periods- always linked?

around my period or sex, yet I'm living in constant pain. A few GP's have now suggested endo which...

What is a ‘normal’ period vs. An endo period?

My periods usually last between 5-7 days. They are at their heaviest in the first two days and then

Endo diagnosis without heavy periods?

suffer with extreme pain after sex and intermittent pelvic pain during the month which can be...