Endo & periods. : Hello, Just wondering if... - Endometriosis UK

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Endo & periods.

Salz10 profile image
20 Replies

Hello,

Just wondering if anybody had light and short periods, despite having endometriosis?????

My periods are fairly light and only last around 4 days, this really makes me question my endo diagnosis.

TIA

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Salz10 profile image
Salz10
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20 Replies
Foxted profile image
Foxted

Just like you, I have light and short periods but with severe endo and the pain is unbelievable.

Over time I have come to learn that everyone has different symptoms when it comes to endometriosis.

With endo, everything is possible, I just learnt that my shoulder/ arm and knee pain are linked to endo.

Salz10 profile image
Salz10 in reply to Foxted

Thank you for your reply. My lack of period pains etc makes me question my endo diagnosis. I am awaiting a laparoscopy but have had scans and an mri.

I have suffered with leg pain, sciatic pain for years and wonder now if the two are related!

Foxted profile image
Foxted in reply to Salz10

There is a high possibility that it’s Endo but let’s wait for the laporoscopy to confirm that.

You will be okay.

annatonina profile image
annatonina in reply to Foxted

How did you confirm that the peripheral pains were linked to endo? I get something similar and I've always wondered if it was linked but not known how to find out!

Jess_cole profile image
Jess_cole

I’ve not been given the official diagnosis but been told I have endometriosis and I suffer with super irregular short periods. They are agonising and the pain lasts longer than the period but the blood about 3-4 days.

Ellletay profile image
Ellletay

Hi, for years I had light, pain free periods despite having endo, my problems were always around ovulation. Wasn't until after having two IUIs that symptoms have gotten out of control including heavy, painful periods.

Salz10 profile image
Salz10 in reply to Ellletay

I also have pain free periods, but I do get ovulation pain and other random aches and pains throughout my cycle!

I'm sorry to hear they've gotten worse for you though, that sucks! 😢

Marianna16 profile image
Marianna16

I have stage 3/4 endo with adhesions, unconfirmed bowel endo and my periods are only 2 days long. So hopefully that answers your question. X

Salz10 profile image
Salz10 in reply to Marianna16

Are your periods extremely painful?

Marianna16 profile image
Marianna16 in reply to Salz10

Yes, today hubby nearly called an ambulance as I was in that much pain. I honestly feel the pain is worse than childbirth x

Salz10 profile image
Salz10 in reply to Marianna16

Oh my gosh I'm so sorry to hear that. It sounds so hard. 😣😢

Marianna16 profile image
Marianna16 in reply to Salz10

I really would like to say that you get used to it but it never really gets any easier if I’m honest. Currently lay in bed with a heated blanket on as high as possible as I don’t have enough hot water bottles for the amount of areas I’m in pain 😔 but I know it’ll pass just gotta ride it out xx

Giraffe92 profile image
Giraffe92

My periods are very painful and heavy, however only last 2 days. I get a lot of my endo pains at other times of the month.

Butterfly5480 profile image
Butterfly5480

Hiya, I have light periods, actually not massively painful either. I got an ovarian cyst which they wanted to remove as it was quite large, they mentioned endo but said it was prob not much. They went in and it was everywhere, bladder bowel and all over ovary. I had got a lot of ibs type symptoms and pain from cyst and generally feeling pretty shit, weak, tired etc but not the typical heavy painful periods......I guess we are all different, many women don’t know they have it at all.

Hope that’s helpful, not to say you will have loads too but just giving my experience 💕

Salz10 profile image
Salz10 in reply to Butterfly5480

Thank you for your reply. I forgot to also say my periods are pretty much pain free. I feel so guilty as I know most womens periods are so severe.

I get ovulation pain, and other symptoms throughout my cycle too.

I'm on the waiting list for a laparoscopy, but who knows when that will be!

Its good to know there are other people with lighter/less painful periods that have been diagnosed.

Livingdeadgirl profile image
Livingdeadgirl

Yes!!! So glad you posted this. My issues started because I got severe pains yet my periods stopped! Drs fobbed me off all the time. They came back after a laparoscopy which confirmed my uterus is stuck to my bowel but have since kinda disappeared again. Makes me feel like such an endo fraud when so many women suffer so badly with heavy periods! X

Jess_cole profile image
Jess_cole in reply to Livingdeadgirl

This is how I feel! Periods stopped in May and I get really sore ones anyway but I’ve been in agony since and they won’t take me serious!

Megandmog profile image
Megandmog

Yep I have stage IV endo, apparently most complex and severe my surgeon has seen, my periods were never heavy just extremely painful. Since surgery I am now pain free and only last 2 days xx

Nzendogirl profile image
Nzendogirl

I had a hysterectomy a few months ago due to stage four endo. Am in my thirties. My periods were always light but had excruciating pain since they began. I was told by three different doctors that I couldn’t possibly have endo as my periods were so light. When a gynae finally opened me up I already had stage 4. You definitely can have endo with light periods!

SarahBee1 profile image
SarahBee1

Hey, my periods are very light too. I’ve only started to experience excruciating pain for the last 4 months and have recently been diagnosed with endo. We are all different and all have different symptoms.

During an internal scan they found that I had a number of large cysts on both ovaries so waiting for a lap to have these removed - but like you say, who knows when this will be.

Good luck with everything, hope you stay pain free :)

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