Hi all, I'm so new to this - all of it!
I had my diagnostic laparoscopy 2 weeks ago- after waiting since may 2013 when originally going in for the diagnostic lap after waiting for so long, unfortunately I suffered an anaesthetic allergy as they put me to sleep and the operation got postponed, causing me a further 8 months of pain and added to my 4/5 years of unknowing what was actually wrong inside of me...
went through all of the painful allergy testing and received no positive outcome on the possible drug which caused my anaphalaxis shock during anaesthesia- unlucky and heartbreaking.
& now a big red flag on my hospital records and a pretty medical alert bracelet for me to wear daily!
my surgeon still wanted to go ahead with my diagnostic laparoscopy as he believed me in my pain and suffering and with 3 anaesthetists on stand by and a medical team of 9, they put me to sleep to have an investigation!
I woke up to be told - they had indeed found endometriosis and a lot of it inside, all around my womb, top of my cervix and deep in my vagina and pelvic region- also that my right side of the bowel is severely distended indicating the possibility of IBS too- they did dithermy on my insides to help relieve my pain
endometriosis was suspected before my operation and to be honest one of the outcomes I really hoped not to be found inside of me after reading the horror stories and suffering of many women of the symptoms like I myself suffered from- I hoped for it to be less serious something like adhesions from my appendix surgery in 2012 which was also mentioned but at least It is now confirmed and as everybody around me including certain family members and employers which scrutinize me for time off ill, and the pain I can be in thought 'it was in my head the pain'- & it wasn't, I do truly have a condition which wasn't just 'in my head'
Iv extremely suffered since being around the age of 14/15 and been told numerous times it was my diet and my overall health (when I am pretty normal sized and BMI okay ect) and been told its just IBS and also being on the drug Amitriptyline low dose for my pain when diagnosed with IBS- allthough the pain described by myself which i told doctors including severe cramps when menstruating, clots, abdominal cramps daily, food intolerances, pelvic pain, fatigue all day long, lower back pain, and feeling sick alot and painful sex with bleeding afterwards- the amitriptyline was prescribed because my gp could not be bothered! it does not help in anyway shape or form so I am coming off of that hopefully.
I don't have much of a clue about this condition and I am reading up on it and I have a follow up appointment soon with my surgeon but I'm gutted to be a lady with this condition and hoping I can improve in the future.
big kisses to all those ladies suffering.