so my first lap was three weeks ago, i awoke to be told by the surgeon that i have severe endo that was too severe to treat at the lap, and that a hysterectomy inc ovaries etc will be required. That was pretty much it and for the last three weeks i've tried to get my head around whats best thing to do, as you hear that hysterectomy does not always cure severe endo, and then the hrt debate.
So i see the consultant today, it was blatantly obvious he had not read my notes, as he seemed to think i'd just had an ablation for a bit of heavy bleeding and said you should be fine in a few weeks!!!! i asked why i was told to have a hysterectomy etc, he then looked at my notes, oh yes i see you have a few spots of endometriosis, he then drew a diagram of the uterus etc and explained that endo flows back through the fallopian tubes and lands in the pelvis, he then told me my ovaries are stuck to various other parts of my pelvis, and its in between bladder, womb and bowel and oh yes there is lots of it, yes this might cause some pain, hmmm you reckon :/ i asked why it wasn't treated at the time of lap, he seemed to avoid that question. he said give it time to allow the ablation to sort out the endo pain, and within two minutes contradicted himself and said the ablation wont help endo pain!!
he said see me in three months, i got a little tearful, he said he could put on the list for a hysterectomy, i asked would they remove the endo at the same time, yes he said, i forgot to ask how they would remove it, he then said yes remove it all and pop you on a bit of hrt if you need it, i asked about the hrt and endo that will it cause it to grow again, he said that no it doesnt and that it is a myth!!
its now left i will see him in two months, he has put me on the list for a hysterectomy but i still feel had i not raised any questions that he would have just sent me on my way, purely because he hadnt bothered to read my notes, he also said no rush for the hysterectomy as its not like i have cancer is it!! so i feel i've wasted that appointment as i just didnt ask the right stuff, but he kind of threw me by his initial lack of what i was there for, but he was so hard to ask questions, he was nice enough but i feel all what i've read up on, the real womens experiences he has poo pooed, he is meant to be the endo specialist for that hospital.
i'm in far more pain now than pre-lap, i'm not sleeping barely due to extra pain, or i'm having to go the loo 8-10 times a night since the lap, i'm not drinking before bed, i've not stopped bleeding since lap, i was actually on my period when i had the lap, carried on bleeding and now my period has come i think, i asked would the ablation work yet he didnt really know.
he sent me out to wait to get my paperwork for next pre-op, as he came back out he said are you ok, and put his arm around me and patted my back, in quite a compassionate way, i think he actually read my notes in those few minutes and realised what had been going on.
Gp on friday, i know she won't be happy with how this appointment went, at least i'm still in the system though - any advice would be good though guys xxx