I am 20 years old and was diagnosed with severe extensive endo last month. I had been suffering for years prior and no doctor could work out what was wrong until they finally opened me up in January. They found the endo was so severe that I was on the borderline of the doctor not knowing where to start! Basically my insides were a mess and the endo was burned away however as you all know there is no cure for this horrible condition and I am on zoladex which has given me a horrible menopause like state for 3 months until I have my second laparoscopy.
Basically what I am asking for advice on is whether this pain is going to be this bad for the rest of my life unless I have a full hysterectomy soon? My doctor told me I will need one eventually however they are trying to push it back as far as possible so I can have children. Me and my partner have even discussed having children now to get this over with as I'm scared the endometriosis will spread to my Fallopian tubes (the only place unaffected by the endo) soon and my time to conceive will be over I am scared and alone, I feel so depressed and my whole world feels like it is falling apart due to the pain I am in every day that no pain killer will ease!
I am looking forward to hearing from women who are suffering like me and who may have been through a hysterectomy. Thank you!