I wonder if anyone can help...
So I had my lap a few months ago, during which wide spread endo was found in my pelvis as well as a rectovaginal nodule. it was all successfully removed.
After i came out of hospital i felt so blessed that I was finally going to get control of my body back. I'd always had bad periods, but the symptoms got so severe over the past 3/4 years that they tore apart my life. i was exhausted aaalllll the time, in pain, unable to eat, it was horrible. It got to the point were i was barely leaving the house, dropped out of school, lost most of friends and was really unhappy. I was diagnosed with depression and had frequent anxiety attacks. There were points where i honestly just didn't want to live anymore because the symptoms were so bad and no one was taking me seriously.
Anyway, after surgery I felt so relieved that all that was behind me. The endo was gone and i was ready to start building up a life for myself again without it making me so sick i couldn't function.
Three, nearly four months down the line and I STILL have symptoms. I have recovered from the operation, but my periods have literally not changed at all. Same old pain keeping me up for days on end, same old digestional issues, same old exhaustion. I am absolutely heart broken.
Last week I spoke to my surgeon and she told me that during surgery she noticed my uterus was abnormally large, swollen and discoloured. She thinks it's a sign of adenomyosis. She basically told me to get myself on the pill or another form of hormone treatment to repress it. She wouldn't offer me a hysterectomy at this time because I'm so young and have not had children.
I don't really know what to do. I'm super drug sensitive so i've avoided taking any medication up until now (was on a lot of things as a child and it was unbearably horrible so I am terrified to go down that path again) And I can't really find much info on this disease. I mean, there isn't much on endo but for adenomyosis there is basically nothing out there!
I just wondered if there were any other girls around my age going through the same thing? Or if anyone has any info on the disease they could show me?
I don't know what to do from here. I want relief from the pain so badly I'm considering pushing for a hysterectomy anyway.
Any replies would be so welcome. Thank you.