I too suffer from pain from my right pelvic/hip/back/etc area, which radiates all the way down to my leg and also i feel it is travelling all the way up to my neck, in effect my right side feels completely 'jammed up'. I am having a really bad flare up at the moment. It has taken years for me to be diagnosed (lap march 2011) after being told it's 'all in my head', stress, IBS, etc, etc.....
My advice is don't give up, after all you know your body better than anyone so don't be fobbed off!!!! All my pestering finally got me referred to a gynae, after being referred to a gastroentrologist for IBS (it was the gastro that eventually referred me to the gynae, but I had to ask!!) and now, finally I am waiting to be referred to an endo specialist in Manchester (again, I had to ask and even give the consultant the details?!?!?!!) which was recommended to me by an endo support group i have recently joined.
There are odd days where i have a glimmer of hope of what its like to feel normal, but they are very few and far between. I love them days!! I have tried all manner of things, various painkillers (without much effect) back to back pill (made pain worse, weight gain, emotional wreck!!), CBT (its NOT all in my head!?), physio for said pain (complete waste of time), an osteopath (private, again for said pain, i did feel this helped a bit but more for the postural effects than the endo) and I am considering acupuncture as some one told me they had very good results with this and have been pain free for over 2yrs
I prefer to treat things as naturally and holistically as possible and try to keep a high anti-inflammatory diet to avoid painkillers. Shutting my ovaries down (as they are trying to persuade me to do) scares the hell out of me! As do all the symptoms that come with it! And at 35 my greatest worry is whether i will ever be to have a baby (I also have PCOS)
Sorry if I've rambled on a bit here, but i'm new on here and i got a bit carried away?!!
Wishing you all pain free and happiness xxx