So yesterday i returned to my doctors after months and months of being in continuous pain- not just in my pelvis and legs like normal (normal for endo pain that is), but ive been having pain all over my body. Stiffness in legs resulting to some days having to literally pick my legs up out of bed to get going. I cant get enough sleep i constantly wake up feeling like ive had none yet i go to bed at 9 and wake up at 6 - this used to be plenty!
So my doctor said Its my weight, i dont have endometriosis anymore and the weight is the problem (im a size 18 and have been trying to loose weight anyway), Since June i have only lost 10lb despite doing regular excercise even though im in pain, which im being tested for thyroid function etc, but his idea was to just put me on a pill that helps loose weight. anyway...
He has diagnosed me with Fibromyalgia but said there is nothing he can do and i just have to put up with it, as well as endo, there is nothing more he can do as in his eyes i shouldnt have it no more after having a laproscopy in 2010 and no period since the endo cells can not grow therefore im not in any pain.
by this point i broke down to which he replied your depressed- fill out this questionnaire and i'll pop you on anti depresents (funny that one of the questions i have to answer is "Do you ever feel alone?" my answer would have been yes when my doctor does not help or listen or try to help me. I'm generally a positive person and try not to let this disease and lack of support get to me but like many of you im sure, i do have bad times where i get down and i do get depressed but im not needing anti depressents. not once did the doctor even examine me nor look at me!!!
So to make this blog a little shorter (sorry about the rant), I left my doctors with a prescription for laxatives, a diet pill, anti depressants, blood test (only useful thing) and the advice that there is nothing and no doctor that can help me with endo or FM, i have to put up with it and live on tramadol for life. Great!
I then had a hospital appointment with the gynaecologist who said pretty much the same thing in terms of endo. That i dont have it - i get that they ablated the endo away and without periods in theory i shouldnt be in pain but i just dont get it! how can i be in this much pain in the pelvic area and nothing be wrong. Ive had ultrasounds and internal ultrasounds but all was fine. They dont want to do another lap in case it causes more pain and go in for no reason which again is understandable really.
I'm at my wits end and dont know what to do - last night i sat there and said i wouldnt go to another doctor again as they dont help! i just dont know what to do!
im changing my diet to no wheat etc as i have seen a nutritionist and do believe this may help!
can anyone help or advise.
Sorry again for such a long post!!